Transcript: Your Health Season 3 Episode 24 | Mar 19, 2002

A slate reads "The advice given in the following program is of a general nature only. Viewers should consult their own medical professional for medical advice specific to their circumstances."

(music plays)

Against a gray background, an animated blue, green and gray grid shows clips of doctors and patients as the white letters of the title of the show fly forward: "Your Health."

Maureen says THIS WEEK.

Jody is in her early thirties, with long straight brown hair. She wears a black shirt.

Jody says YES, WE HAVE INHERITED
THE GENE FOR HUNTING TONS,
AND IT WAS PROBABLY THE
WORST NEWS I'VE EVER HAD.

Maureen says SEG THE FAMILY
HISTORY.

Heather Ross is in her forties with short curly blond hair. She wears a black blazer over a white shirt.

Heather says THE MECHANICAL DEVICES AS
A BRIDGE TO TRANSPLANT ARE
ALLOWING US TO KEEP OUR MOST
CRITICALLY ILL PATIENTS ON
THE HEART TRANSPLANT LIST
ALIVE.

Maureen says HIGH-TECH
TREATMENTS FOR AILING
HEARTS.
AND.

Paul Caldwell is in his late fifties, with a beard and receding white hair. He wears a blue shirt and patterned brown tie.

Paul says THIS BABY'S HEAD IS TOO
BIG FOR THIS MOTHER'S
PELVIS.

Maureen says AND A FOR
ACCEPTS DELIVERY ON...
FORCEPS DELIVERY ON MEDICINE
101.

The animated grid appears showing clips of a woman holding a baby, pills, a surgery, a needle and a man doing exercise.

The title of the program reads "Your Health." The "R" in "Your" ends with an "X."

Maureen Taylor stands next to a screen in a studio. She is in her late thirties with shoulder-length light brown hair. She wears a bright blue blazer and light patterned silk scarf.

Maureen says HELLO, I'M
MAUREEN TAYLOR, MORE THAN
400 YEARS AGO WOMEN IN SALEM,
MASSACHUSETTS, WERE BURNED
AT THE STAKE.
PEOPLE THOUGHT THEIR
BEHAVIOUR MARKED THEM AS
WITCHES.
NOW SOMETHING MANY OF THOSE
WOMEN SUFFERED FROM
HUNTINGTON'S DISEASE.
HUNTINGTONS IS AN INHERITED
BRAIN DISORDER THAT CAUSES
PERSONALITY CHANGES,
INVOLUNTARY MOVEMENTS AND
DEMENTIA.

The TV screen next to her shows pictures of Jody and women of her family.

Maureen continues THIS WEEK WE PROFILE ONE
FAMILIES THAT'S LIVING WITH
THE LEGACY OF HUNTINGTONS.

[monitor beeps]
A blue slate reads "Family Legacy. Produced by Janet Aronoff."

A clip plays.

(soft music plays)

Maureen says AT AGE 31 JODY
HAS THE SAME DREAMS THAT
MANY WOMEN HER AGE HAVE.

Jody and Doug sit on a sofa.

Jody says MY HOPES, THAT DOUG AND I
WILL HAVE OUR PERFECT
WEDDING AND SHORTLY AFTER I
WILL GET PREGNANT AND HAVE A
BABY, MAYBE TWO, AND
HOPEFULLY I WILL BE HEALTHY
ENOUGH TO HELP TAKE CARE OF
THEM UNTIL THEY'RE PROBABLY
TEN, I WOULD IMAGINE I WILL
PROBABLY START GETTING SICK
BY THEN.

Maureen says JODY KNOWS TIME
IS PRECIOUS BECAUSE SHE
CARRIES THE GENE FOR A
DIBILL TATING DISEASE.
THE GENE CAUSES HUNTINGTONS,
ALTHOUGH IT'S RARE, EVERY
ONE WHO HAS THE GENE WILL
HAVE THE DISEASE.
CHILDREN BORN TO PEOPLE WITH
HUNTINGTON'S DISEASE HAVE A
50 percent CHANCE OF INHERITING THE
GENE.
JODY GOT IT FROM HER MOTHER
WHO GOT IT FROM HER MOTHER.
UNTIL THE SYMPTOMS ABOUT
VEYS, THE ONLY WAY TO KNOW
YOU HAVE HUNTINGTONS IS
THROUGH GENETIC TESTING.
AT AGE 29 JODY WANTED TO
KNOW HER FATE.

Pictures of Jody, her mother and grandmother flash by.

Jody says I DECIDED TO GET TESTED
AFTER SEEING MY MOM GO
THROUGH A LOT OF THE
TROUBLES THAT SHE'S GONE
THROUGH WITH HAVING
HUNTINGTONS, THE INABILITY
TO HANDLE DAY-TO-DAY
SITUATIONS LIKE COGNITIVE
ABILITIES THAT WE ALL TAKE
FOR GRANTED, AND FINANCIAL
THINGS.

A caption appears on screen. It reads "Jody."

Jody continues I WANT TO BE ABLE TO KNOW IF
I HAD IT THAT I COULD PLAN
FOR IT BETTER.
THE NIGHT BEFORE I WENT FOR
THE RESULTS, I THOUGHT THERE
WAS A LITTLE VOICE INSIDE OF
YOU, I THOUGHT I AM GOING TO
TEST NEGLECT TIFERX I DON'T
HAVE IT.
AND IT WAS THE ONLY TIME I
LET MYSELF THINK ABOUT IT.
AND THEN, THEN I THINK ABOUT
IT AGAIN.
I TOOK THE DAY OFF WORK AND
WENT IN FOR THE RESULTS.

Jody and Doug pat a dog.

She continues AND THEY DON'T WASTE ANY
TIME TELLING YOU.
THEY TELL YOU AS SOON AS YOU
WALK INTO THE ROOM, LIKE,
YOU KNOW, YES, YOU HAVE
INHERITED THE GENE FOR
HUNTINGTONS.
AND IT WAS PROBABLY THE...
THE WORST NEWS I'VE EVER HAD.
IT WAS LIKE HAVING THE WIND
KNOCKED OUT OF ME, AND AT
THE SAME TIME HAVING
SOMEBODY RIPPING MY HEART
OUT.
IT WAS JUST AWFUL, IT REALLY
WAS.
I COULDN'T BELIEVE IT I JUST
DID NOT THINK THAT I WAS
GOING TO HAVE IT.

Maureen says JODY'S SISTER
SHERRY DIDN'T REALIZE HER
DEPRESSION AND ANGRY
OUTBURSTS WERE EARLY
SYMPTOMS OF HUNTINGTON'S
DISEASE.

The caption changes to "Sherry." Sherry is in her mid-thirties with short black hair. She wears glasses, a white cardigan over a brown shirt.

Sherry says WELL, YOU KNOW, THE
PAINTING "THE SCREAM,"
THAT'S HOW I FELT.
LIKE THAT PAINTING.
I JUST WANTED TO SCREAM MY
HEAD OFF.
AND I WAS JUST SO FRUSTRATED
AND SO ANGRY AND I NEVER
KNEW WHY.
LIKE HER SISTER, SHERRY
DECIDED TO BE TESTED.
WHEN I GOT MY RESULTS BACK
IT WAS JUST LIKE A BIG WHAM
RIGHT IN THE GUT IT WAS LIKE
OH MY GOD, THIS IS WHY I
HAVE BEEN, YOU KNOW, JUST...
I COULDN'T BELIEVE T YOU
KNOW, SO SHOCKING IT'S LIKE
OH MY GOD.
THIS ANSWERS ALL MY
QUESTIONS, THIS EXPLAINS
EVERYTHING, YOU KNOW.
I JUST FLOORED ME, I
COULDN'T BELIEVE IT.

Maureen says HUNTINGTON'S DISEASE IS A
NEURODEGENERATIVE DISORDER
WHICH MEANS BRAIN CELLS DIE
AT AN ACCELERATED RATE.

A brain scan appears on a computer screen.

Anne Summers is in her mid-forties with short brown hair and bangs. She is wearing glasses, black blazer and a gray turtleneck sweater.

Anne says THE THREE MAJOR AFFECTS
ARE ON BEHAVIOUR, ON
COGNITIVE DEVELOPMENT OR
COGNITIVE ABILITY, I GUESS,
INTELLECTUAL ABILITY AND ON
MOVEMENT OF THE BODY.
ANOTHER AFFECT WOULD BE A
SEVERE WASTING OR SEVERE
WEIGHT LOSS TOWARDS THE END
STAGE OF THE DISEASE.

Maureen says Dr. ANN SUMMERS IS A
CLINICAL GENETICIST WITH A
SPECIALTY IN HUNTINGTONS.

Anne says IT USUALLY STARTS WITH A
PERSONALITY CHANGE WHICH ASK
QUITE A DIFFICULT STAGE
BECAUSE IT'S NOT A STAGE WE
CAN RECOGNIZE IN MEDICINE,
SOMEBODY BECOMES A LITTLE
BIT MORE VOLATILE, MAY
BECOME A BIT OF A HER HIT,
SOMETHING LIKE THAT.
BECOMES MORE DIFFICULT FOR
THE PEOPLE AROUND HIM OR
HERSELF.
BUT THERE IS NOTHING
MEDICALLY WRONG WITH THEM.

The caption changes to "Courtesy: Huntington Society of Canada."

A clip shows a middle-aged man walking in a park shaking his arms and shoulders.

Anne continues THE PART OF THE DISEASE THAT
WE CAN ACTUALLY SEE AND
DIAGNOSE IS THE MOVEMENTS
WHICH IS WHAT ANYBODY CAN
DIAGNOSE REALLY, THESE
MOVEMENTS.

The caption changes to "Doctor Anne Summers. Clinical Geneticist. North York General Hospital."

Anne continues AND THESE ARE LARGE
MOVEMENTS OF PRETTY WELL THE
WHOLE BODY, INVOLVING THE
TRUNK, THE LIMBS AND ALSO
THE FACE.
AND ALONG WITH THAT, THERE
ARE THE MUSCLES OF THE MOUTH
CAN BE INVOLVED.
SO YOU CAN GET
INCOORDINATION OF SWALLOWING
AND OF SPEECH.
SO AS THE DISEASE GOES ON,
PEOPLE TEND TO CHOKE A LOT
MORE EASLEY WHEN THEY EAT
AND DRINK AND ALSO THEIR
SPEECH BECOMES MORE AND MORE
DIFFICULT TO UNDERSTAND.

Maureen says NOT EVERYONE
DEVELOPS CORPORATION RIA OR
INVOLUNTARY MOVEMENT.
BUT THOSE WHO DO ARE OFTEN
SADLY MISUNDERSTOOD.

Nancy Webb is in her mid-forties with blond hair tied-up and bangs. She wears a blue turtleneck pullover.

Nancy says WHEN SOMEBODY HAS KORIA
IN THE EARLY STAGES IT COULD
MIMIC SOMEBODY INTOXICATED.
SO THAT SOMEBODY WITH EARLY
HUNTINGTONS COULD LACK AS
THOUGH THAT THEY'VE HAD TOO
MUCH TO DRINK.
SO WE HAVE HAD OUR PEOPLE
PICKED UP BY POLICE OFFICERS
WHO HAVE THOUGHT THAT THEY
HAVE BEEN ON DRUGS OR
DRINKING.
SO THERE IS THAT KIND OF
UNAWARENESS.

Nancy talks to Linda and Earl. Linda sits on a wheelchair. Linda has short brown hair and wears a red pullover and blue trousers. Earl is in his forties, with a moustache and receding brown hair. He wears a black jacket and white shirt.

Nancy says IT WOULD BE EASIER FOR
YOU...

Maureen says NANCY WEBB IS A SOCIAL
WORKER AND DIRECTOR OF THE
HUNTINGTON'S SOCIETY OF
CANADA.
SHE COUPLES AND ADVOCATES
FOR INDIVIDUALS AND FAMILIES
LIVING WITH HUNTINGTONS.

Nancy says IF THERE ISN'T
UNDERSTANDING FROM THEIR
FRIENDS AND THE PEOPLE
AROUND THEM, THEN THEIR
SOCIAL NETWORK COULD
DIMINISH.
AND WHEN THAT HAPPENS, YOU
GET LOSS, LOSS, LOSS, AND
SOME VERY SAD SITUATIONS.

Anne says THINGS LIKE
BREAKUP OF FAMILIES,
SOMETIMES CRIMINAL CHARGES,
THINGS LIKE THAT.
VERY OFTEN FAMILIES WILL
FEEL QUITE GUILTY LATER ON
WHEN THEY REALIZE THIS WAS
HUNTINGTON DISEASE AND VERY
OFTEN PEOPLE WILL SAY IF I
HAD ONLY KNOWN I WOULD HAVE
STAYED WITH HIM OR HER.

Maureen says LINDA SPRINGALL
IS ONLY 40 YEARS OL.
HER HUSBAND SAYS SHE WAS
OUTGOING, TALKATIVE AND FUN
LOVING BUT CHANGED
DRAMATICALLY IN JUST TEN
YEARS.

A female nurse pushes Linda’s wheelchair.

The female nurse says SO LINDA, WE WILL DO SOME
WALKING ON THE BARS.

Maureen says A YEAR AND A
HALF AGO EARL WAS UNABLE TO
CARE FOR HER AT HOME, AND
MOVED HER INTO A NURSING
HOME.

Anne says PEOPLE DON'T DIE OF
HUNTINGTON DISEASE PER SE.
BUT WHAT HAPPENS OVER TIME
IS THEY BECOME MORE AND MORE
WASTED.
AND THE PERSON BECOMES VERY,
VERY THIN, AND THEN THE
FIRST BUG THAT COMES ALONG,
THE FLU BUG OR PNEUMONIA OR
WHATEVER WILL KILL THEM
BECAUSE THEY REALLY HAVE NO
RESERVE.

Maureen says WITH NO CURE AVAILABLE,
THE BEST DOCTORS CAN OFFER
ARE MEDICATIONS TO HELP
CONTROL THE EMOTIONAL
UPHEAVAL BUT THEY CAN'T
CHANGE THE COURSE OF THE
DISEASE.

The nurse helps Nancy walk as she holds to two vertical parallel bars.

Anne says ONE OF THE MAJOR FACTORS
IS DEPRESSION, AN IT HIGHLY
TREATABLE.
WHAT USED TO HAPPEN IN THE
PAST IS PEOPLE WOULD SAY OH,
THAT PERSON HAS HUNTINGTON
DISEASE, THERE IS NOTHING WE
CAN DO, AND THAT WOULD BE
THE END OF IT.
AND NOW WE'RE QUITE
AGGRESSIVELY TREATING
DEPRESSION WHICH, OF COURSE,
IMPROVES PEOPLE'S QUALITY OF
LIFE.

Maureen says SHERI WAS PUT ON
ANTI-DEPRESSANTS AND IT MADE
ALL THE DIFFERENCE TO HER
AND HER FAMILY.

Sherry says I WAS DIAGNOSED WITH
MAJOR DEPRESSION, AND MOOD
SWINGS SO THEY PUT ME ON
ANTI-DEPRESSANTS AND IT IS
THE FIRST TIME IN MY LIFE I
EVER HEARD A DOCTOR SAY
DRUGS CAN BE GOOD
She laughs and continues SO SO FAR
THEY HAVE BEEN VERY GOOD.

Sherry plays table football with her children.

Maureen says SHERRY ALREADY
HAD THREE CHILDREN BEFORE
SHE WAS DIAGNOSED.
BUT SAYS SHE WOULD HAVE HAD
THEM ANYWAY.

Sherry says I HAVE ALWAYS WANTED TO
BE A MOTHER, I ALWAYS WANTED
TO HAVE KIDS.
YOU KNOW, MY CHILDREN MEAN
THE WORLD TO ME.

Maureen says JODY HAS DREAMS
OF HAVING CHILDREN TOO.

Jody says AS LONG AS I HAVE BEEN
SEEING ANY SORT OF COUNSELOR
ABOUT HUNTINGTONS I HAVE
ASKED ABOUT HAVING CHILDREN.
AND I KNOW THAT THERE IS
PREDICTIVE TESTING YOU CAN
HAVE ON YOUR FETUS.

The caption changes to "Nancy Webb. Social Worker."

Nancy says WE ARE DEALING WITH FEELS,
WE'RE DEALING WITH WHAT IT
IS GOING TO BE LIKE TO HAVE
A BABY AND ALWAYS WONDERING
DOES THIS BABY HAVE THE
GENE.
WHAT IS GOING TO BE LIKE
WHEN THAT MOM LATER ON OR
THAT DAD DOES FIND OUT THAT
THEIR CHILD CARRIES THE
GENE.
AND IN MY EXPERIENCE, THAT'S
BEEN THE HARDEST FOR MY
CLIENTS.

Maureen says IDENTIFYING THE GENE IN
1993, ENABLED PARENTS TO
TEST FOR THE DISEASE IN
UTERO.
IT ALSO GAVE SCIENTISTS THE
FIRST KEY TO FINDING A CURE.

A zoom in view shows colourful genes against a black background.

Anne says ONE OF THE THINGS THAT
CAN OFTEN HAPPEN WHEN YOU
KNOW THE GENE IS YOU CAN
DEVELOP AN ANIMAL MODEL IN
ORDER TO START TESTING
DIFFERENT DRUGS OR DIFFERENT
THERAPIES.
AND THAT HAS HAPPENED.
SO IT IS A SLOW PROCESS, AND
ANY DISEASE THIS INVOLVES
THE BRAIN WHICH IS OUR MOST
COMPLEX ORGAN AND WE DON'T
EXPECT TO HAVE INSTANT
ANSWERS.
BUT THE RESEARCH IS GOING ON,
IT IS EXCITING, IT'S JUST
NOT THERE YET.

Maureen says IT CAN'T COME
SOON ENOUGH FOR THE
THOUSANDS OF FAMILIES LIVING
WITH THIS DIBILL TATING
DISEASE.

Jody says I THINK I AM ONE OF THOSE
PEOPLE WHO ACTUALLY DOES
ACCOMPLISH ALL THE THINGS
THAT THEY WANTED TO DO IN
THEIR LIFE BECAUSE I DO HAVE
THE KNOWLEDGE THAT MY LIFE
WILL BE CUT SHORT.

Sherry kisses his sons.

Sherry says KNOWING THAT I HAVE THE
GENE MAKES ME APPRECIATE
LIFE A LOT MORE.
I SAY I LOVE YOU A LOT MORE.
I CERTAINLY KISS MY KIDS A
LOT MORE.

The clip ends.

(music plays)

Maureen says IN A MOMENT
WE'LL LEARN ABOUT SOME
HIGH-TECH TREATMENTS FOR
HEART DISEASE BUT FIRST IN
THIS WEEK'S QUIZ,

A gray slate reads "Quiz."

She continues HOW OFTEN
DOES YOUR HEART PUMP YOUR
TOTAL VOLUME OF BLOOD AROUND
REQUEST BODY.
ONCE A MINUTE, ONCE AN HOUR
OR ONCE A DAY.
THE ANSWER LATER ON "YOUR
HEALTH."

Now, Maureen and a guest sit at a table.

Maureen says IT'S AN EXCITING
TIME TO BE A HEART DOCTOR.
THE PROMISE OF
XENOTRANSPLANTATION,
ARTIFICIAL HEARTS AND PUMPS
THAT KEEP PATIENT AS LIVE
UNTIL AN ORGAN BECOMES
AVAILABLE.
UNFORTUNATELY, IT'S STILL A
DESPERATE TIME TO BE A
PATIENT WAITING FOR A NEW
HEART, BECAUSE THAT STILL IS
YOUR BEST CHANCE OF
SURVIVING AND THEY ARE STILL
IN SHORT SUPPLY.
Dr. HEATHER ROSS IS A
CARDIOLOGIST AND THE MEDICAL
DIRECTOR OF THE TRANSPLANT
PROGRAMME AT THE UNIVERSITY
HEALTH NETWORK.
WELCOME Dr. ROSS.

Heather says MY PLEASURE TO BE HERE.

Maureen says YOU CERTAINLY
RECOMMENDED THAT THE
CANADIAN GOVERNMENT HOLD OFF
ON APPROVING TRANSPLANTING
ANIMAL ORGANS INTO HUMANS.
BUT IS THERE STILL SOME
PROMISE FOR THAT DOWN THE
ROAD.

The caption changes to "Doctor Heather Ross. Cardiologist. University Health Network."

Heather says I THINK THERE IS WE DID A
PUBLIC CONSULTATION WITH
CANADIANS OVER THE PAST YEAR
TO LOOK AT WHAT THEIR VIEW S
WERE ON ZENOTRANSPLANTATION
WHICH IS THE TRANSFER OF
LIVING ANIMAL CELLS, TISSUES
OR ORGANS FROM ANIMALS TO
HUMANS.
AND AT THIS TIME CANADIANS
FEEL THAT THE RISKS ARE
GREATER THAN THE POTENTIAL
BENEFITS.
AND THE MAJOR RISK THEY WERE
CONCERNED ABOUT IS THE
POSSIBILITY OF INFECTION OR
VIEWER ALL INFECTION FROM
THE ANIMALS TO HUMANS.
BUT INTERESTINGLY CANADIANS
WERE MORE SEG OF THE
POSSIBILITY OF CELLULAR
XENOTRANSPLANT FOR A
LONG-TERM BENEFIT.
AND LEAST ACCEPTING OF AN
ORGAN TRANSPLANT FROM AN
ANIMAL FOR A SHORT-TERM GAIN.
SO THERE WAS A LITTLE BIT OF
VARIED RESPONSE DEPENDING ON
WHAT TYPE OF TRANSPLANT.
AND A LOT OF THE CONCERNS
CANADIANS RAISE SAID MAYBE
THESE CAN BE DEALT WITH AND
DEALT WITH, AND YOU SHOULD
ASK US LATER.
SO NOT RIGHT NOW, NOT QUITE
AT THE TECHNOLOGY STAGE
WHERE IT IS A GOOD IDEA AT
THIS TIME BECAUSE OF THE
POTENTIAL RISKS.
BUT ASK US AGAIN HADDER.

Maureen says SOMETHING TO
REVISIT.
IN THE MEANTIME TELL US
ABOUT THESE NEW MECHANICAL
HEART PUMPS.

Heather says WELL, THIS IS ONE OF THE
MOST EXCITING THINGS AND TO
DIGRESS, THE USE FOR THESE
IS FOR HEART FAILURE.
AND HEART FAILURE IS AN
EPIDEMIC.
WHICH IS A VERY STRONG WORD.
BUT IT IS AN EPIDEMIC IN
THIS COUNTRY.
IT IS THE MOST RAPIDLY
GROWING DIAGNOSIS IN THE
COUNTRY.
AS OUR BABY BOOMERS AGE, WE
ARE GOING TO CONTINUE TO SEE
MORE HEART FAILURE.
IT IS THE COMMON FINAL
PATHWAY FOR MANY DIFFERENT
TYPES OF HEART DISEASES,
HEART ARTERY DISEASE BEING
THE COMMONEST.
SO WE NEED TO FIND WAYS TO
TREAT PEOPLE WHO DEVELOP
END-STAGE HEART FAILURE.
AND ONE OF THE MOST EXCITING
THINGS IS THE MECHANICAL
DEVICES.
MECHANICAL DEVICES COME IN A
VARIETY OF DIFFERENT TYPES,
TOTAL ARTIFICIAL HEARTS
WHERE WE TAKE YOUR HEART OUT
AND PUT THE MECHANICAL
DEVICE IN.

Maureen says RIGHT.

Heather says AND THEN MECHANICAL
ASSIST DEVICES WHERE YOUR
HEART STAYS IN AND THE
DEVICE IS ADDED SO THIS IT
ACTS AS A BACKUP ASSISTANCE
TO YOUR FAILING HEART.
THE DEVICES COME IN WHAT IS
KNOWN AS FULLY IMPLANTABLE
MEANING THAT ARE YOU NOT
TETHERED OR HOOKED UP IN ANY
WAY.
AND THEN DEVICES THAT ARE
ACTUALLY NOT FULLY IMPLANTED,
EITHER THERE IS A POWER
CIRCUIT THAT IS HOOKED UP
OUTSIDE YOU, OR ACTUALLY
SOME OF THE DEVICE IS
ACTUALLY OUTSIDE YOU.
SO THERE IS A LOT OF
DIFFERENT VARIETIES.
THEY ALSO COME IN PULSATILE
MEANING JUST AS YOUR HEART
IT PULSES THE HEART AND THEN
CONTINUOUS FLOW.

Maureen says AND ARE THESE
BEING USED RIGHT NOW IN
CANADA.

Heather says YES, THEY ARE.
IN FACT, ACTUALLY THERE ARE
QUITE A FEW PROGRAMS IN THE
COUNTRY THAT ARE USING THEM.
EDMONTON, OUR PROGRAMME,
OTTAWA, MONTREAL, THERE ARE
TWO PROGRAMME, A PROGRAMME
IN QUEBEC CITY AS WELL.

Maureen says AND IS THE IDEA
HERE JUST TO KEEP THE
PATIENT ALIVE UNTIL AN ORGAN
BECOMES AVAILABLE?

Heather says SO CURRENTLY IN CANADA
THEY ARE ONLY APPROVED AS A
BRIDGE TO TRANSPLANT.
SO FOR EXACTLY THAT
INDICATION.
BUT PEOPLE IN THE AREA ARE
MOST EXACCEPTED... EXCITED
AS AN ALTERNATIVE TO
TRANSPLANT.
WHAT IS CALLED DESTINATION
THERAPY.
THE THINKING BEING THAT IF
WE USE THEM AS A BRIDGE TO
TRANSPLANT, IT DOESN'T
CHANGE THE NUMBER OF
TRANSPLANTS WE DO BECAUSE
THAT'S LIMITED BY THE NUMBER
OF ORGANS WE HAVE AVAILABLE.
SO IT IS NOT GOING TO SOLVE
THE ORGAN CRISIS OR DEAL
WITH HOW MANY PATIENTS HAVE
END STAGE HEART FAILURE.
SO REALLY IN A PERFECT WORLD
IT WOULD BE AS AN
ALTERNATIVE.

Maureen says BUT THERE ARE
COMPLICATED WITH...
COMPLICATIONED WITH HAVING
THIS FOREIGN OBJECT IN YOUR
BODY.
TELL ME ABOUT THOSE.

Heather says SO IN A RECENT STUDY THAT
WAS DONE WHICH WAS QUITE A
LANDMARK STUDY WHERE THEY
LOOKED AT PATIENTS WHO WERE
NOT CANDIDATE FORCE HEART
TRANSPLANT AND THEY TOOK
THESE PATIENTS AND
RANDOMIZED THEM OR FLIPPED A
COIN AND PUT ONE GROUP ON
THIS MECHANICAL ASSIST
DEVICE AND ONE GROUP
CONTINUED WITH MEDICATIONS,
AND WHAT THEY SHOWED WAS
MORE PEOPLE WERE ALIVE IT HE
OF ONE YEAR, IF THEY HAD
THIS ASSIST DEVICE, AND ALSO
MORE PEOPLE WERE ALIVE AT
THE END OF TWO YEARS.
THE PROBLEM WAS THE DEATH
RATE OR MORTALITY RATE WAS
STILL VERY HIGH IN BOTH
GROUPS SO THAT AT THE END OF
THE TWO YEARS ONLY EIGHT
PERCENT OF THE PEOPLE ON
MEDICATIONS WERE STILL ALIVE,
AND ONLY 23 percent OF THE PEOPLE
WITH THE MECHANICAL ASSISTS
WERE STILL ALIVE.
SO NOT GREAT.
AND THE MAIN REASON WAS
BECAUSE OF THE
COMPLICATIONS.
SO, INFECTION, IT IS A
FOREIGN BODY, AND IT IS
THEREFORE AT RISK FOR
INFECTION.
THERE WERE ALSO CONCERNS
ABOUT DEVICE FAILURES WHICH
WAS A MAJOR CONCERN AND
BECOMES AN ONGOING CONCERN
WHEN WE THINK ABOUT USING
THESE FOR THE LONG-TERM.
THERE WAS ALSO RISK OF BLOOD
CLOTS, AGAIN BECAUSE OF THE
FOREIGN BODY, SO THOSE WERE
THE MAJOR COMPLICATIONS THAT
OCCURRED.

Maureen says IN THE CASE OF
THE SELF-CONTAINED
ARTIFICIAL HEART THAT WAS
IMPLANTED IN AN AMERICAN MAN,
HE DIED OF COMPLICATIONS.
TELL US ABOUT THAT STORY.

Heather says YES, IS THAT DEVICE WAS
KNOWN AS AN ABIOCORE ONE OF
THE TOTAL ARTIFICIAL HEARTS
SO YOUR HEART OUT THIS
ARTIFICIAL HEART PUT IN AND
IT WAS PUT IN AND HE WAS
ALSO NOT A CANDIDATE FOR
TRANSPLANTS SO THIS WAS
AGAIN LOOKING AT AN
ALTERNATIVE.
ONE OF THE MAJOR
COMPLICATIONS THAT HE HAD
WAS A STROKE WHICH REMAINS A
COMPLICATION WITH ALL THE
DIFFERENT DEVICES.
THE RATES OF STROKE ARE
DIFFERENT BETWEEN THE
DIFFERENT DEVICES BUT STROKE
RISK IS STILL A RISK WITH
ALL OF THEM.

Maureen says WHEN YOU ARE
COMPARING THE HEART PUMP TO
THE ARTIFICIAL HEART, IF THE
ARTIFICIAL HEART STOPS
WORKING YOU DON'T HAVE
ANOTHER HEART IN THERE ANY
MORE THAT CAN BEAT FOR YOU.

Heather says THAT IS OBVIOUSLY ONE OF
THE CONCERNS BECAUSE YOUR
HEART HAS BEEN TAKEN OUT.
IF THE DEVICE FAILS YOU ARE
GOING TO DIE.
WITH AN ASSIST DEVICE IF THE
DEVICE FAILS, YOU STILL HAVE
YOUR HEART.
NOW SOMETIMES YOUR HEART
FUNCTION MAY NOT BE GOOD
ENOUGH AND I MAY STILL DIE
WITH A DEVICE FAILURE ABOUT
SOMETIMES YOUR HEART MAY BET
AND IT MAY BE POSSIBLE THAT
YOU WOULD BE ABLE TO GET
BACK TO THE HOSPITAL IN TIME
FOR SOMETHING TO BE DONE.

Maureen says ORGAN DONATIONS,
LET'S GET TO THAT TOPIC
THEN.
I THOUGHT THAT DONATION
RATES HAD STAYED STABLE IN
CANADA.
SO WHY IS THIS... WHY ARE WE
HEARING SO MUCH ABOUT A
SHORTAGE NOW.

Heather says WELL, BECAUSE THE RATES
ARE STABLE AND LOWER THAN WE
WOULD LIKE AS TRANSPLANT
PHYSICIANS.
SO OVER THE PAST DECADE, THE
TRANSPLANT DONOR RATES HAVE
BEEN STABLE AT ABOUT 14 TO
16 PER MILLION POPULATION.
MOST PEOPLE IN THE AREA
DON'T FEEL THAT WE ARE
REALIZING ALL POTENTIAL
DONORS.
SO ON THE ONE HAND, THERE IS
EVIDENCE THAT THERE ARE
FEWER CANADIANS DYING WHO
MAY BE POTENTIAL DONORS AND
THAT IS OBVIOUSLY GREAT
NEWS.
BUT ON THE OTHER HAND OF
THOSE PEOPLE WHO HAD A
TRAGIC DEATH, WE WANT TO
ENSURE THAT ALL POTENTIAL
DONORS ARE REALIZED.

Maureen says I HAVE TO ASK
YOU, WOULD YOU LIKE TO SEE A
TESTIMONY IN CAN DID WHERE
WE HAVE ASSUMED CONSENT FOR
ORGAN DONATIONS.

Heather says SO THERE ARE TWO, APART
FROM THE CURRENT ALTRUISTIC
GIFT OF LIFE THAT WE HAVE IN
CANADA, THERE ARE TWO OTHER
WAYS THAT WE COULD GO.
ONE IS CALLED MANDATED
CHOICE.
AND THAT MEANS THAT AT THE
TIME THAT YOU WOULD SIGN
EITHER FOR YOUR HEALTH CARD
OR FOR YOUR DRIVERS LICENCE,
YOU WOULD BE ASKED, CHOOSE,
YES, NO, OR UNDECIDED.
IF YOU CHOSE UNDECIDED YOU
WOULD THEN BE APPROACHED AT
A LATER TIME TO REVIEW THAT.
THAT IS THE SYSTEM THAT I
WOULD LIKE TO SEE IN PLACE
PERSONALLY.
PRESUMED CONSENT WHICH MEANS
THAT YOU ARE O A DONOR,
UNLESS YOU SAY NO, IS A BIT
CONCERNING TO ME BECAUSE WE
HAVE TO HAVE SUCH AN
INFORMATION-EDUCATION BLITZ
THAT EVERYONE RECOGNIZED, SO
THAT IF SOMEBODY REALLY
DIDN'T WANT TO BE AN ORGAN
DONOR, WHICH IS THEIR RIGHT,
AND THEY WERE UNAWARE OF
THAT SYSTEM, THEY MIGHT
BECOME AN ORGAN DONOR WHEN
IT MIGHT HAVE BEEN AGAINST
THEIR WISHES.
SO I HAVE CONCERNS ABOUT IS
RIGHTS WHEN YOU LOOK AT
PRESUMED CONSENT.
ALTHOUGH IT DOES EXIST IN
SOME COUNTRIES SUCH AS
BELGIUM.

Maureen says IN THE LAST A 30
SECONDS THEN, WHAT IS THE
LAST THING YOU WANT TO SAY
TO PEOPLE OUT THERE WH
HAVEN'T GIVEN THIS ANY
THOUGHT YET.

Heather says THINK GO IT THERE ARE
PEOPLE DYING EVERY DAY,
WAITING FOR ORGANS.
THE WAITING TIMES ARE GOING
UP.
ONE QUARTER OF MY PATIENTS
DIE WAITING.
THINK ABOUT IT.
PUT SOME REAL THOUGHT INTO
IT.
IT IS THE GIFT OF LIFE.
AND WE CAN DO BETTER WITH
OUR CURRENT SYSTEM THAN WE
ARE DOING.

Maureen says AND TELL YOUR
FAMILY IT'S WHAT YOU WANT.

Heather says ABSOLUTELY, VERY
IMPORTT.

Maureen says THIS WAS GREAT,
THANK YOU VERY MUCH.

Heather says MY PLEASURE.

Maureen says COMING UP.

In a clip, Paul says WE GRASP THE BABY'S HEAD
HERE AT THE STRONGER BONES
OF THE CHEEK AND JAW.

Maureen says Dr. CALLEDWELL
DELIVERS ON MEDICINE 101.

The opening sequence rolls again.

Now, Maureen stands next to a screen that reads "Health Digest."

Maureen says THIS WEEK IN OUR HEALTH
DIGEST, RESEARCHERS IN
CHICAGO HAVE REPORTED VERY
RARE SIDE AFFECT IN FOUR
WOMEN TAKING A DRUG FOR
RHEUMATOID ARTHRITIS.

The TV screen next to her shows a picture of a bottle of yellow pills and body rush. A caption reads "Lupus."

Maureen continues THE WOMEN DEVELOPED SYMPTOMS
OF LUPUS INCLUDING FACE
REDDENING AND BOBBY RASH
AFTER TAKING THE BIOLOGIC
DRUG ENBRILL.
THE SYMPTOMS DISAPPEARED
WHEN THE TREATMENTS WERE
STOPPED.
ENBRILL INHIBITS AN IMMUNE
SYSTEM PROTEIN CALLED TNF.
THE REACCEPTERS SUGGEST THAT
TNF MAY HAVE A PROTECTIVE
ROLE AGAINST LUPUS.

The caption changes to "Big Fit." A picture shows a military hat and an US flag.

Maureen continues BE ALL THAT YOU CAN BE, ALL
280 POUNDS IF THAT IS YOUR
CHOICE.
U.S. ARMY RECRUITS APPEAR TO
BE HEAVIER THAN IN YEARS
PAST BUT EXERCISE TESTS
SUGGEST THEY ARE ACTUALLY
MORE FIT THAN THEIR
PREDECESSORS.
ARMY DOCTORS STUDIED THE
AEROBIC CAPACITY AND
STRENGTH OF 1998 RECRUITS
AND COMPARED THEM WITH
RECRUITS FROM 1978 AND '83.
WHILE THE '98 RECRUITS
WEIGHED MORE AND CARRIED
MORE BODY FAT, THEY WERE AS
A ROBICALLY FIT AS THE
EARLIER RECRUITS AND WOMEN
WERE MORE FIT THAN THEIR
PREDECESSORS.
IN ADDITION, ALL RECENT
RECRUITS HAD BET MUSCLE
STRENGTH.

The caption changes to "Lifestyle." A picture shows a woman, a hot dog and the female symbol.

Maureen continues A SMALL STUDY IN RHODE
ISLAND SUGGESTS THAT HAVING
BREAST CANCER DOESN'T ALWAYS
INDUCE WOMEN TO CHANGE THEIR
LIFESTYLE.
IT IS NOT CLEAR HOW LOSING
WEIGHT AND QUITTING SMOKING
AFFECTS PATIENTS AFTER
CANCER TREATMENT, THOUGH
THERE IS EVIDENCE THESE
CHANGES CAN PROLONG LIFE.
BUT THE STUDY FOUND THAT
ALTHOUGH A LARGE MAJORITY OF
WOMEN BELIEVED THEY COULD
CHANGE THE COURSE OF THEIR
CANCER WITH EXERCISE, MORE
THAN HALF OF THEM WERE
OVERWEIGHT OR OBESE AND
STILL CONSUMING A HIGH FAT
DIET.

(music plays)

Maureen says NOW FOR THE ANSWER TO THIS
WEEK'S QUIZ, YOU CARRY ABOUT
FIVE LITRES OF BLOOD AND
YOUR HEART PUMPS IT AROUND
YOUR ENTIRE BODY ABOUT ONCE
A MINUTE.

The Quiz slate appears. The answer "1. Once a minute" appears highlighted in yellow.

Maureen says BILL KOSBY USED TO DO A
GREAT ROUTINE ABOUT WATCHING
HIS WIFE GIVE BIRTH.
HE WAS AMAZED THAT THE
BABY'S HEAD COULD FIT
THROUGH THE MOTHER'S PELVIS,
BUT AS Dr. PAUL CALDWELL
EXPLAINS, SOMETIMES IT
DOESN'T.

Paul sits at a table with a stethoscope and other objects on it. Behind him, a human anatomy model sits on a piece of furniture.

Paul says WE HUMANS SELL IN THAT
PART OF THE BRAIN CALLED THE
CORTEX.
IT IS THE SO-CALLED HIGHER
PART OF THE BRAIN, THE PART
THAT DOES THE THINKING, THE
REASONING, THE CALCULATING,
AND THE MANAGING.
CORTEX IS WONDERFUL IF YOU
ARE AN EINSTEIN OR BEETHOVEN
BUT IT IS NOT SO GREAT IF
YOU ARE A NEWBORN.
YOU SEE, THE MORE CORTEX YOU
HAVE, THE BIGGER YOUR HEAD
IS, AND FOR A NEWBORN,
HAVING A HUGE HEAD INCREASES
THE CHANCES THAT YOU WILL
HAVE DIFFICULTY WHEN YOU ARE
DELIVERED.
HERE IS A PLASTIC MODEL 6
AN INFANT'S SKULL.
NOTICE HOW THE SKULL ISN'T
MADE OF ONE SINGLE PIECE OF
BONE BUT PLATES OF BONE,
SHEETS OF BONE, WHICH ARE
JOINED TOGETHER OR FUSED.
IN FACT, THERE ARE A COUPLE
OF AREAS WHERE THEY DON'T
TOUCH AT ALL, THE SO-CALLED
SOFT SPOT ON THE BABY'S
SCALP.
READY OR NOT, ON YOUR
BIRTHDAY, THIS SKULL WITH
ITS PRECIOUS CARGO OF BRAIN
HAS TO TRAVEL DOWN THROUGH
THE MOTHER'S PELVIS AND OUT
INTO THIS SHINING WORLD.

He places a pelvis model on top of the skull.

He continues WITHOUT ANY HELP AT ALL,
ABOUT 90 percent OF WOMEN WORLDWIDE
DELIVER THEIR BABIES WITHOUT
ANY PROBLEMS.
BUT IN 10 percent OF CASES,
SOMETHING GOES WRONG.
A COMMON PROBLEM IS CALLED
DISPROPOSING, A FANCY WAY OF
SAYING THAT THIS BABY'S HEAD
IS TOO BIG FOR THIS MOTHER'S
PELVIS.

The caption changes to "Doctor Paul Caldwell. Family Physician."

He continues NOW IN LABOUR THERE IS SOME
GIVE TO THE PELVIS.
THE LIGAMENTS LOOSEN SO THE
PELVIS ACTUALLY WIDENS.
AND THERE IS ALSO SOME GIVE
IN THE INFANTS SKULL, THESE
SHEETS OF BONE CAN BE
COMPRESSED A LITTLE TO MAKE
THE WHOLE PACKAGE SMALLER.
BUT IN A CASE OF
DISPROPORTION, THE INFANT
SIMPLY GETS STUCK.
FACED WITH THIS OBSTRUCTED
LABOUR AS IT IS CALLED,
THERE ARE TWO THINGS THAT WE
CAN DO.
FIRST WE CAN TRY TO GRASP
THE INFANT'S HEAD AND HELP
IT DESCEND INTO THE PELVIS.
WE COULD USE FORCEPS SUCH AS
THESE.
THE TERM IS LATIN FOR GRASP
OR TONGUE.
THEY WERE INVENTED IN THE
17th CENTURY AND THEIR
DESIGN HAS CHANGED LITTLE
SINCE.
WE GRASP THE BABY'S HEAD
HERE AT THE STRONGER BONES
OF THE CHEEK AND JAW, THAT
WAY WE PROTECT THE SKULL AND
THE PRECIOUS BRAIN WITHIN.
WE COULD ALSO USE ANOTHER
INSTRUMENT, A VACUUM
EXTRACTOR.
THIS SOFT PLASTIC CUP IS
PLACED ON THE INFANT'S SCALP
LIKE THIS, AND SUCTION HELPS
THE OBSTETRICIAN PULL THE
BABY OUT, AGAIN WITHOUT
DAMAGING THAT PRECIOUS
CORTEX.
IT IS AN AMAZINGLY SIMPLE
MECHANISM WHICH IS OFTEN
VERY HELPFUL.
THERE IS ONE OTHER OPTION,
OF COURSE, AND THAT IS THAT
WE CAN PERFORM A CESAREAN
SECTION, AN OPERATION TO
DELIVER THE BABY BY OPENING
THE US IN THE MOTHER'S
ABDOMEN IT IS CALLED
CESAREAN SECTION BECAUSE
JULIUS CAESAR, THE FIRST
EMPEROR OF ROAM WAS
SUPPOSEDLY DELIVERED BY THIS
DRAMATIC METHOD.
IN CANADA TODAY ABOUT 15 percent OF
BABIES ARE BORN BY CESAREAN
SECTION.
IT IS IRONIC, ISN'T IT.
THESE ON STET CALL FORCEPS
ARE USED TO PREVENT A
CESAREAN SECTION WHILE THESE
FORCEPS ARE OFTEN USED TO
SERVE UP, YOU GUESSED UP,
CAESAR SALAD.

Maureen says NOW THERE IS AN
APPETIZING IMAGE.
WE HAVE TRANSCRIPTS OF
Dr. CALDWELL'S MINIMEDICAL
LESSONS ON OUR WEB SITE AT
WWW.TVO.ORG/YOURHEALTH.
NEXT WEEK ON "YOUR HEALTH."

A clip plays.

A woman with short hair says THERE IS CONTROVERSY THAT
MAMMOGRAMS DOESN'T SAVE
LIVES, IT DOESN'T WORK, FROM
MY OWN EXAMPLE, BECAUSE I
FEEL THAT'S HOW MINE WAS
FOUND.

Maureen says DOES MAMMOGRAPHY
SAVE LIVES.

A woman with a brown jacket says I THINK STILL THE BEST
APPROACH WE HAVE IS EARLY
DETECTION THROUGH REGULAR
MAMMOGRAPHY SCREENING.

A man wearing glasses says THE RESULT WAS AT THE END
OF THE STUDY THERE WAS NO
DIFFERENCE IN THE NUMBER OF
DEATHS.

Maureen says WHAT SHOULD
WOMEN DO WHEN THE DOCTORS
DON'T AGREE.

The clip ends.

Maureen concludes THAT'S ON THE NEXT EDITION
OF "YOUR HEALTH."
UNTIL THEN, I'M MAUREEN
TAYLOR.
THANKS FOR WATCHING.

(music plays)

A final slate reads "Your Health. Email: yourhealth@tvo.org. Fax: 416-484-4519. Mail: Box 200, Station Q, Toronto, ON, M4T 2T1."

The end credits roll.

Executive Producer, Patricia Ellingson.

Host and Producer, Maureen Taylor.

Producer, Cathy Perry.

Director, Michael Smith.

Logo: CEP Local 72m.

A production of TVOntario. Copyright 2002, The Ontario Educational Communications Authority.

Watch: Your Health Season 3 Episode 24