Transcript: Elder Care | Apr 26, 2000

(music plays)

Fast clips show different sets of hands performing activities on the table such as pulling petals from a daisy, drawing a big red heart, tuning a violin, flipping through the pages of a book, cooking, and pouring a glass of red wine.
In animation, the title appears inside the shape of a house: “More to life.”

Maureen Taylor sits in a studio with yellow walls and a small TV set in the background, which reads “More to life.”
She is in her late thirties, with wavy blond hair in a bob. She’s wearing a red blazer.

Maureen says WELCOME TO “MORE
TO LIFE,” I'M MAUREEN
TAYLOR.
MOST OF US HOPE TO STAY
HEALTHY AND ACTIVE TO A RIPE
OLD AGE AND DIE PEACEFULLY
IN OUR OWN BEDS.
AND SOMETIMES IT WORKS OUT
THAT WAY.
BUT NOT ALWAYS.
AS WE AGE, WE BECOME FRAIL
AND DEVELOP THE DISEASES
THAT COME WITH OLD AGE.
DEMENTIA, ALZHEIMER'S,
OSTEOPOROSIS.
TODAY ON “MORE TO LIFE.”
WE'RE GOING TO TALK ABOUT
CARING FOR THE ELDERLY,
ABOUT ALZHEIMER'S AND
FAILING MEMORY AND ABOUT
MAKING DECISIONS FOR
OURSELVES.
Dr. WILLIE MOLLOY IS A
GERIATRICIAN WHO SPECIALIZES
IN TREATING PATIENTS WITH
DEMENTIA.
HE'S WORKED WITH THE ELDERLY
AND THEIR FAMILIES FOR MORE
THAN 20 YEARS.
IF YOU HAVE QUESTIONS ABOUT
AGING, ABOUT ALZHEIMER'S,
NURSING HOMES OR LIVING
WILLS, GIVE US A CALL.

A caption appears on screen showing two phone numbers.

Maureen continues IN TORONTO 416-484-2727
LONG DISTANCE IS A FREE CALL, DIAL
1-888-411-1234
AND YOU CAN E-MAIL YOUR QUESTION
FOR DOCTOR MOLLOY TO MORETOLIFE AT TVO.ORG
AND WELCOME BACK,
NICE TO SEE YOU.

Dr. Willie Molloy says THANKS,
MAUREEN.

Willie Molloy is in his late forties, clean-shaven, bald with short brown hair on the sides. He is wearing a striped black and brown sweater, pale blue shirt, and a purple tie.

Maureen asks WHAT'S NEW IN
ALZHEIMER'S RESEARCH?

A caption reads “Dr. Willie Molloy. Geriatrician.”

Willie says WELL,
WE HAVE TWO NEW DRUGS, EXLON
AND REMANIL.
IT'S RIFASTIG MINE AND
GELLANTAMINE.
THE GALLANTAMINE'S
INTERESTING, I THINK IT'S
MADE FROM A SNOW DROPPER
FLOWER AND IT WAS MNGSED IN
HOMERS ILIAD AS A TREATMENT,
SO IT'S BEEN AROUND FOR A
LONG TIME.
SO THEY'VE ISOLATED IT NOW,
IT'S A GOOD DRUG --

Maureen says SOUNDS HERB
BALANCE, IF YOU DON'T MIND
ME SAYING SO.

Willie says I ALWAYS LAUGH AT THESE HERBAL
PEOPLE.
THEY'RE TAKING THESE PILLS
WITH GOD KNOWS WHAT IN THEM
IN MEGA CONCENTRATIONS AND
MOST DRUGS WE HAVE CAME FROM
HERBS WHICH WERE PROCESSED
DIFFERENTLY.
I ALWAYS RECOMMEND TO DRUG
COMPANIES THAT THEY SHOULD
PUT PICTURES OF PLANTS.

Maureen says OH, YEAH, NICE
FLOWERS.

Willie says YOU
KNOW THE WAY WE GET THESE
STERILE PILL CON TERN?
I THINK A PICTURE OF A PLANT
WOULD BE BETTER.

Maureen says BUT BACK TO THE
DRUGS, HOW DO THEY WORK?

Willie says THEY
ALL INCREASE THE SEDOLCODEINE
IN THE BRAIN AND HELP THE
MEMORY.
WE USED TO HAVE ARASAT WHICH
IS A GOOD DRUG, GIVES YOU A
MEMORY BOOST AND WE HAVE TWO
MORE NOW.

Maureen asks DO YOU THINK ANY
OF THOSE WILL WORK LONGER?

Willie says THE GALLANTAMINE MAY WORK
LONGER, EACH OF THEM HAVE
SIDE AFFECTS AND BOTH ARE
TWICE ADAY WHERE AS THE
ARISEPT MAY BE ONCE A DAY.
AND SO WE'LL BE LOOKING AT
PEOPLE AND DESIGNING THEM
MORE FOR PEOPLE.
FOR EXAMPLE SOMEONE LIVING
THEM ON THEIR OWN, IN TERMS
OF MEDICATION WE'D PROBABLY
USE ARISEPT, FOR A BIGGER
KICK -- WE HAVE SOME CHOICES
AND ESPECIALLY IF SOMEONE
DOESN'T TOLERATE ONE, WE
HAVE A SECOND CHOICE.

Maureen says WHICH IS GOOD.
WHAT'S THE RELATIONSHIP AS
FAR AS YOU UNDERSTAND IT
BETWEEN ESTROGEN AND
ALZHEIMER'S?
WHAT DO WE KNOW THERE?

Willie says I WAS
IN CHINA LAST YEAR AND I
HEARD A YOUNG CHINESE
DOCTOR -- SHE LOOKED ABOUT
14 BUT I'M SURE SHE WAS
OLDER.
YOU KNOW THESE PEOPLE LOOK
YOUNG.
SHE PRESENTED FANTASTIC
DATA.
I THINK FIVE THOUSAND PEOPLE
OR 50,000, SO A PHENOMENAL
NUMBER OF CHINESE WOMEN AND
SHE SHOWED THE YOUNGER THEY
WERE WHEN THEY GOT THEIR
MENARC, THEIR FIRST PERIOD,
THE LESS LIKELY THEY WERE TO
GET ALZHEIMER'S.
WE'VE ALWAYS KNOWN THE OLDER
THE WOMAN WHEN SHE GOT
MENOPAUSE THE LESS LIKELY
BUT WHAT THEY'RE SHOWING NOW
IS TOTAL YEARS OF EXPOSURE.
SO IF YOU GOT YOUR PERIOD
YOUNGER AND FINISHED LATER,
YOU'RE LESS LIKELY TO GET
IT.
IF YOU GOT YOUR PERIOD LATER
AND FINISHED YOUNGER YOU'RE
MORE LIKELY TO GET IT IT'S
THE TOTAL YEARS OF EXPOSURE
TO ESTROGEN THAT PROTECT
YOU.
WHEN YOU GET ALZHEIMER'S IT
DOESN'T WORK.
YOU CAN'T TAKE ESTROGEN.

Maureen says SO ESTROGEN IS
NOT A TREATMENT FOR
ALZHEIMER'S.

Willie says NO,
BUT IT DOES PROTECT YOU.
AND I THINK -- NOW I'M NOT
AN EXPERT ON THIS BUT MY
IMPRESSION IS MOST WOMEN WHO
HAVE MENOPAUSE SHOULD
CONTINUE TO TAKE ESTROGEN
FOR AT LEAST TEN YEARS
BECAUSE WHAT THE ESTROGEN
DOES IS IT PROTECTS YOUR
BONES AND YOUR BRAIN NOW FOR
SURE FROM ALZHEIMER'S, AND I
THINK THERE'S SOME STUFF
WITH HEART, BUT THAT'S ALL
UP IN FLUX NOW, BUT BONES
AND ALZHEIMER'S ARE SERIOUS
ONES.
BUT IF YOU CONTINUE TO --
AND HEART DISEASE.
BUT IF YOU CONTINUE TOO LONG,
I THINK THE RISK OF BREAST
CANCER STARTS TO INCREASE.

Maureen says YES, YES.
OKAY SO, THAT'S ESTROGEN.
I'M ALSO READING THAT
NICOTINE MAY BE BENEFICIAL
TO PEOPLE WITH
ALZHEIMER'S -- TELL ME
THAT'S NOT TRUE.

Willie says WELL,
NICOTINE, MAYBE IN PATCH,
MAYBE NOT CIGARETTES.
ONE OF THE DRUG, THE
GALLANTAMINE COMING OUT HAS
NICOTINE --
THE ALZHEIMER'S RECEPTOR IS
A MUSCULARENIC RECEPTOR, THE
NICOTINIC IS THE CIGARETTE,
BUT PROBABLY NOT BY SMOKING
BECAUSE IT DOES YOUR CHEST
IN AND YOU GET LUNG CANCER
BUT MAYBE BY PATCHES.

Maureen says REALLY?

Willie says YEAH,
YEAH.

Maureen asks HAS THAT BEEN
TESTED YET?

Willie says PEOPLE
ARE TESTING IT.
THERE'S BEEN A FUNNY
RELATIONSHIP BETWEEN SMOKING
AND ALZHEIMER'S.
THE DUTCH, A STUDY FROM
HOLLAND SAID IF YOU STOP
SMOKING YOU'RE MORE LIKELY
TO GET ALZHEIMER'S.
NOW THEY CAME BACK AND
REVISED IT.
IT'S TOUCHY.
NOBODY WANTS TO COME OUT AND
SAY THAT SMOKING HELPS YOU,
LET'S FACE IT.
BUT PATCHES MAY BE MORE
PALATABLE.
SO WE'RE LOOKING AT THE
PATCHES AND STUFF LIKE THAT.

Maureen asks WHAT NECESSARILY
PREVENTION?

Willie says I WAS
AT A CONFERENCE RECENTLY IN
HOLLAND -- NOT HOLLAND,
AUSTRIA, AND A GUY GOT UP, A
GUY FROM THE STATES, AND
QUITE A REPUTABLE RESEARCHER,
AND HE HAS DATA FROM A PLACE
CALLED THE BRANTT COUNTY
STUDY IN JOHN HOPKINS.
AND HE'S STARTING TO SHOW --
AND THIS WAS PRELIMINARY
DATA, BUT HE'S STARTING TO
SHOW LOW-DOSE ASPIRIN WILL
REDUCE THE RISK OF
ALZHEIMER'S BY ABOUT 50 percent.

Maureen asks REALLY.
ASPIRIN?

Willie says ASPIRIN.

Maureen says WHICH PEOPLE
TAKE TO PREVENT HEART
DISEASE RIGHT NOW.

Willie says HEART degrees
DISEASE.
THERE'S A HUGE RELATIONSHIP
BETWEEN HEART DISEASE AND
ALZHEIMER'S.
BETWEEN STROKES AND
ALZHEIMER'S.
MOST PEOPLE WHO GET ALGZ
HAVE CHANGES IN THE BRAIN
THAT LOOKS LIKE THEY'RE
GOING TO GET STROKES.
IF YOU DON'T HAVE THOSE
VASCULAR CHANGES YOU DON'T
SEEM TO GET ALZHEIMER'S.
WE DON'T REALLY UNDERSTAND
IT BUT ALL THE RISK FACTORS
FOR HEART DISEASE, HIGH
BLOOD PRESSURE, DIABETES,
THEY'RE ALL RISK FACTORS FOR
ALZHEIMER'S AS WELL.
VERY INTERESTING.
NOBODY QUITE UNDERSTANDS IT
YET BUT WHAT THEY'RE SHOWING
IS THAT ANTI-INFLAMMATORIES,
THE OLD IBUPROFIN, THOSE
DRUGS, THEY REDUCE THE RISK
OF ALZHEIMER'S.
WE THINK IT'S AN
INFLAMMATORY PROCESS IN
ALZHEIMER'S.
BABY ASPIRIN DOES,
ANTI-INFLAMMATORIES,
ANTACIDS DO IT.

Maureen says AN ANTACID.

Willie says AN
ANTACID REDUCES THE RISK,
BUT NOT SIGNIFICANTLY.

Maureen asks LIKE A TUMS OR
WHATEVER?

Willie says YEAH,
NOBODY KNOWS WHY.
AND YOU KNOW THE DRUGS THEY
TAKE, TAGAMENT, RINICDIE
TAKEN FOR STOMACH ACID THAT
SEEMS TO REDUCE THE RISK.
NO ONE SEEMS TO KNOW WHY.
WHEREAS A PRO TON PUMP
INHIBITOR, TOTALLY WIPES OUT
THE STOMACH ACID, THAT
INCREASES THE RISK.
NOW THERE'S EMERGING DATA.
ALSO VITAMIN B.
B VITAMINS.
I WOULD RECOMMEND TO PEOPLE
WORRIED ABOUT ALZHEIMER'S,
FAMILY HISTORY, LOOK AT A
MULTI-B A COUPLE TIMES A
WEEK WITH FOLATTE AND YOU
SHOULD BE TAKING .6 TO A
MILLIGRAM OF FOLATE A DAY.
THERE'S A BRITISH STUDY THAT
SHOWED THE HIGHER THE B-12
AND FOLATE LEVELS IN THE
BLOOD -- THEY WERE FOLLOWING
PEOPLE OVER TIME -- PEOPLE
WITH VERY HIGH B-12 AND
FOLATE LEVELS WERE FOUR
TIMES LESS LIKELY TO GET
ALZHEIMER'S.

Maureen says PRETTY
SIGNIFICANT.

Willie says YEAH,
IT'S NOT INSIGNIFICANT.
AND HOMOSCISTINE, THE LEVELS
ARE REDUCED BY GIVING
B-VITAMINS.
VITAMIN E, A MULTI-B AND A
BABY ASPIRIN IS SOMETHING
WERNTD LOOK AT.
THAT DATA'S NOT EVEN
PUBLISHED BUT IT'S STARTING
TO COME AND PEOPLE ARE
WORRIED ABOUT GETTING
ALZHEIMER'S, THEY'RE
STARTING TO FORGET AND THEY
SAY TO ME, “WELL LOOK, IT'S
NOT PROVEN.
I DON'T KNOW WHAT HARM YOU
COULD GET TO FROM A VITAMINE
AND MULTI B AND BABY ASPIRIN
SO, SOMETHING TO THINK
ABOUT.
BUT IF YOU'RE ON BLOOD
THINNERS OR IF YOU HAVE A
BLEEDING TENDENCY, MAYBE YOU
SHOULD TALK TO YOUR DOCTOR
AND SAY IS IT OKAY?

Maureen says OKAY.
WE'RE TALKING TO A DOCTOR
THIS AFTERNOON.
HE IS Dr. WILLIE MOLLOY AND
HE'S A GERIATRICIAN AND HE'S
TAKING QUESTIONS ABOUT
ALZHEIMER'S, FAILING MEMORY,
AGING, CARING FOR THE
ELDERLY IS ANOTHER TOPIC WE
WANT TO GET INTO, SO GIVE US
YOUR CALLS.

A caption appears on screen showing two phone numbers.

Maureen continues IN TORONTO 416-484-2727
LONG DISTANCE DIAL
1-888-411-1234
AND YOU CAN SEND IT BY E-MAIL
TO MORETOLIFE AT TVO.ORG
AND ALF IS IN THUNDER BAY.
HELLO, ALF.

Alf says HELLO.

Maureen says HI.
WHAT'S YOUR QUESTION?

Alf says I HAVE QUESTION
FOR Dr. MOLLOY IN REGARDS TO
PROBABLY THE GENETICS OF
ALZHEIMER'S.
I HAVE A HISTORY, A FAMILY
HISTORY ON MY FATHER'S SIDE.
TWO AUNTS, ONE AUNT HAS
ALREADY DIED OF ALZHEIMER'S
AND ONE AUNT HAS JUST --
SHE'S BEEN DIAGNOSED AS
ALZHEIMER'S IN HER 80s -- OR
70s.
AND I'M IN MY EARLY 60 OZ.
AND I WAS JUST WONDERING
WHETHER I SHOULD BE
CONCERNED AND WHAT
PRECAUTIONS I CAN TAKE TO
MAYBE ALLEVIATE, IF I DID
HAVE THE PROBLEM WHAT MY
FAMILY SHOULD LOOK FOR.

Maureen says OKAY WHAT DOES
THAT FAMILY HISTORY SAY TO
YOU, Dr. MOLLOY.

Willie says ALF,
THERE'S TWO TYPES OF GENETIC
PREDISPOSITION TO
ALZHEIMER'S.
ONE IS WHAT THEY CALL
PREALLIANCE -- YOU ACTUALLY
HAVE A GENE.
AND IF YOU HAVE THAT GENE
YOU'RE GOING TO GET
ALZHEIMER'S.
IT'S NOT NEGOTIABLE.
AND THAT'S THE GENETIC ONE,
WHERE YOU -- THEY DESCRIBE
FAMILIES WITH THESE.

Maureen says IT'S ALSO RARE,
ISN'T IT?

Willie says IT'S
QUITE RARE.
5 percent, 10 percent.
I'M NOT SURE WHAT THE
NUMBERS ARE.
THE EXPERT ON THIS IS IN
TORONTO.
WHAT'S HIS NAME?
St. GEORGE HISLOP HE'S DONE
MORE RESEARCH ON GENES I
THINK THAN ANYBODY.
SO THEY'RE THE YOUNG ONES.
THEY TEND TO GET IT IN THEIR
50s AND 60s, ALF, AND YOU
SEE THE FAMILY HISTORY
THERE.
THE MOTHER GOT, THE AUNT GOT
IT, THE GREAT AUNT GOT IT,
AND EVERYBODY AT 55, BOOM,
THEY GOT THE DISEASE!
THAT'S THAT ONE.
THE ONE YOU'RE DESCRIBING,
ALF, IS LESS LIKELY TO BE
THAT ONE BECAUSE THEY'RE
GETTING IT IN THEIR 80s.
AND THAT'S -- IF YOU HAVE A
STRONG FAMILY HISTORY IN
THAT WAY THEN THERE'S
ANOTHER GENE THAT CAN
INCREET RISK AND THAT'S
CALLED APPO-E.
THERE'S THREE DIFFERENT
TYPES OF APPO-E, THERE'S
APPO-E2, E3 AND E4 AND YOU
GET ONE FROM YOUR FATHER,
AND YOUR MOTHER.
SO YOUR GENOTYPE IS TWO-TWO,
OR THREE-THREE, OR FOUR-FOUR.
YOU GET A TWO AND A THREE
FROM MOTHER AND A TWO AND A
FOUR FOR FATHER.
THE APPO-E IS SOMEHOW
INVOLVED IN REPAIRING THE
NERVOUS SYSTEM.
ESPECIALLY AFTER YOU GET A
HEAD TRAUMA.
A LOT OF THESE HOCKEY
PLAYERS GETTING CONCUSSIONS
BLAH HEART DISEASE, YOU
WOULDN'T HAVE A FAMILY
HISTORY OF ALZHEIMERS.
REMEMBER THAT AFTER AGE OF
80 THE RISK OF GETTING
ALZHEIMER'S IS 35 percent IN THE
GENERAL POPULATION SO IF YOU
HAVE ALL THESE OLD FAMILY
MEMBERS THAT ARE LIVING
FOREVER, THEN YOU'RE GOING
TO HAVE A TON OF ALZHEIMER'S
IN THE FAMILY.
IT JUST MEANS THEY'RE LIVING
LONGER AND IF THEY'RE IN
THEIR 80s IT MAY BE A NORMAL
THING.
IF IT'S OCCURRING IN THE 60s
YOU'D PROBABLY BE MORE
WORRIED.

Maureen asks NOW THESE APPO-s,
CAN YOU GET THEM TESTED?

Willie says BUT I
DON'T KNOW WHAT TO SAY TO
ALF IF HE GETS HIMSELF
TESTED, THERE'S NOTHING I
CAN SAY TO HIM.
BECAUSE YOU'RE APPO-E4 I
THINK YOU SHOULD DO THIS OR
THAT.
I SHOULDN'T BE DOING THIS
BUT I'D BE WATCHING MY BLOOD
PRESSURE.
I'D MAKE SURE GENERAL HEALTH
MEASURES.
BLOOD PRESSURE FOR SURE.
IF YOU HAVE HIGHER BLOOD
PRESSURE, ALZHEIMER'S GOES
FASTER.
GET YOUR BLOOD PRESSURE
CHECKED.
MAKE SURE YOUR RISK FACTORS,
LIPPIDS, TRYGLYCEROL, NOT
OVERWEIGHT, A HEALTHY DIET,
AND IF YOU REALLY WANT TO
TAKE SOMETHING, A VITAMIN B,
BABY ASPIRIN, AND VITAMIN B
TWICE A WEEK.

Maureen says THAT'S WHAT YOU
CAN DO.

Willie says IT'S
NOT PROVEN BUT THERE'S DATA
STARTING TO COME SUGGESTING
THIS STUFF MAY ACTUALLY
HELP.
AND YOU MIGHT TO WANT GO AND
SEE SOMEBODY AND GET A CHECK
AND TALK ABOUT IT AND THE
ALZHEIMER'S SOCIETY'S VERY
GOOD.
GIVE THEM A CALL.

Maureen says WE'LL BE GIVING
OUT THAT NUMBER IN FACT AT
THE END OF THE SHOW.
SO THANKS, ALF.
ANNE IS NEXT.
ANNE IS IN SCARBOROUGH.
HI ANNE.

Anne says OH, HI, MAUREEN?

Maureen says HI, GO AHEAD.

Anne says MAUREEN, MAY I
ASK YOU A QUESTION BEFORE I
GET TO Dr. MOLLOY?

Maureen says ME?
NOBODY EVER ASKS ME
QUESTIONS.
OKAY.

Anne says I DO ENJOY YOUR
PROGRAMME.
I WATCH -- I TRY TO WATCH IT
EVERY DAY.
ODD PROGRAMME ON THE
OTHER -- A COUPLE WEEKS AGO
ABOUT CHILDREN AND DIVORCE.

Maureen says RIGHT.

Anne says MY QUESTION IS
CHILDREN AND DEATH.

Maureen says OKAY, I'M NOT
GOING TO BE ABLE TO ANSWER
THAT FOR YOU BECAUSE I'M NOT
THE AUTHOR OF THAT BOOK,
ANNE SO COULD WE, COULD WE
JUST GO TO YOUR QUESTION FOR
Dr. MOLLOY?

Anne says YES.

Maureen says OKAY.

Anne says I WOULD LIKE IT
ASK Dr. MOLLOY WHAT'S THE
DIFFERENCE BETWEEN A LIVING
WILL AND PERSONAL CARE AND
WHICH ONE IS MANDATORY?

Willie says NONE
OF THEM ARE MANDATORY.
THEY'RE ALL, THEY'RE ALL
OPTIONAL.
CAN I START OUT BY CALLING
ALL OF THESE THINGS ADVANCE
DIRECTIVES.
ANY DOCUMENT YOU FILL OUT
ABOUT YOUR HEALTH OR
PERSONAL CARE IN ADVANCE IS
AN ADVANCE DIRECTIVE AND
THERE ARE TWO TYPES.
ONE IS WHAT WE WOULD CALL A
LIVING WILL AND THE OTHER IS
WHAT WE CALL A PROXY.
IN THE LIVING WILL YOU
ACTUALLY GIVE INSTRUCTIONS.
YOU SAY THINGS LIKE “IF I
GET ALZHEIMER'S AND I CAN'T
RECOGNIZE MY FAMILY, AND I'M
INCONTINENT AND I'M LIVING
IN A NURSING HOME AND MY
HEART STOPS, AT THAT TIME
DON'T RESUSCITATE ME.
DON'T TUBE FEED ME, AND IF I
GET PNEUMONIA JUST KEEP ME
COMFORTABLE AND GIVE ME
PALLIATIVE CARE.”
YOU'RE ACTUALLY GIVING
INSTRUCTIONS.
THAT'S A LIVING WILL.
THE OTHER FORMAT IS, YOU SEE,
IF I GET TO THE POINT WHERE
I CAN'T MAKE DECISION, I
WANT MY FRIEND MAUREEN TO
MAKE DECISIONS FOR ME.
WE'VE DISCUSSED THIS, WE
BOTH THINK ALIKE ON THIS
ISSUE, CALL MAUREEN
ACTUALLY NOMINATE
MAUREEN SO THAT'S CALLED A
PROXY OR SUBSTITUTE OR POWER
OF ATTORNEY.
IDEALLY YOU WANT BOTH.
YOU WANT TO GIVE
INSTRUCTIONS, DISCUSS IT
WITH YOUR POWER OF ATTORNEY
AND WITH YOUR FINE-TUNING
THE POWER OF ATTORNEY COULD
SAY WELL, WE DISCUSSED THAT,
I KNOW WHAT THE PERSON WOULD
WANT.

Maureen shows a book titled “Let me decide.”

Maureen says YOU'VE DEVELOPED
AN ADVANCE DIRECTIVE CALLED
“LET ME DECIDE.”
AND WE'RE GOING TO GIVE
INFORMATION OUT ABOUT IT AT
THE END OF THE SHOW BUT TALK
ABOUT THE KINDS OF DECISIONS
THAT YOU ASK US TO MAKE WHEN
WE'RE STILL WELL AND HEALTHY
AND HAVE ALL OUR FACULTIES.

Willie says RIGHT.
WELL, WE DEVELOPED THIS, WE
SURVEYED A THOUSAND
CANADIANS.
AND BEFORE WE EVEN DID IT.
LIKE, I MEAN, WE HAVE
SURVEYED THOUSANDS AND
THOUSANDS OF PEOPLE.
HEALTHCARE PROFESSIONALS AND
GENERAL PUBLIC.
AND YOU SEE, WHEN YOU MAKE
AN ADVANCE DIRECTIVE,
THERE'S A CONTRACT BETWEEN
TWO PEOPLE.
THERE'S ME AS A JOE PUBLIC,
SAYING “I HAVE THIS SENSE
THAT I DON'T WANT MY LIFE
PROLONGED WHEN I'M DYING OR
SEVERELY DISABLED.
AND I HAVE THESE VALUES THAT
I WANT TO GET IN THERE.
SO I WANT TO SAY IF I GET TO
THE POINT WHERE I CAN'T --
USUALLY ADVANCE DIRECTIVES
ARE MADE WITH THINGS LIKE AS
LONG AS I CAN DO THIS...
AS LONG AS I CAN LIVE AT
HOME AND I CAN READ AND I
CAN CARE FOR MYSELF, I'M
OKAY.
THEN DO THE FOLLOWING.”
AND THEN YOU GET TO “WHEN I
CAN'T, WHEN THE TIME COMES
WHEN I CAN'T DO THE
FOLLOWING” THEN AT THAT
POINT JUST KEEP ME
COMFORTABLE.
THAT'S THE KIND OF A VALUE
STATEMENT.
NOW THE HEALTHCARE
PROFESSIONAL WANTS A VERY
SPECIFIC STATEMENT.
THEY WANT WELL, DO YOU WANT
INTRAVENOUS?
DO YOU WANT SURGERY?
DO YOU WANT INTENSIVE CARE?
IF YOUR HEART STOPS WOULD
YOU WANT TO BE TUBEFED?
SEE THESE ARE THE TWO PEOPLE
IN THE CONTRACT.
SO WHAT WE HAD TO DO, WE
DEVELOPED THE ADVANCE DIRECTIVE
WHERE THE PERSON COULD
PERSONALLIZE AND SAY WHAT
THEY WANTED, BUT THE
HEALTHCARE PROFESSIONAL HAD
TO HAVE ENOUGH DETAIL THAT
THEY COULD ACTUALLY FOLT
WISHES.

Maureen says I SEE.

Willie continues SO WE
CONSTRUCTED THIS THING, THIS
CHART, AND WHAT WE HAVE HERE
IS WE HAVE THESE TWO
CONDITIONS THAT WE TALK
ABOUT.

Maureen says RIGHT.

Willie opens the book.

Willie says ONE OF
THEM IS CALLED -- I DON'T
KNOW IF THE CAMERA CAN PICK
IT UP, BUT ONE OF THEM IS
CALLED --

Maureen says HERE, YOU CAN
HOLD IT IN FRONT OF YOU AND
THE CAMERA WILL GET IT FOR
YOU.

Willie says YOU
PROBABLY CAN'T READ IT, BUT
IT SAYS IF MY CONTINUE IS
REVERSIBLE AND I HAVE AN
ACCEPTABLE QUALITY OF LIFE.
SO RIGHT NOW, I CAN DO YOUR
ADVANCE DIRECTIVE.
DO YOU WANT ME TO DO IT WITH
YOU RIGHT NOW?
WATCH HOW LONG IT TAKES.
RIGHT NOW, MAUREEN, IF
YOU'VE GOT A BAD PNEUMONIA
OR BLEEDING ULCER AND THAT
COULD POTENTIALLY KILL YOU
BUT YOU COULD MAKE A
COMPLETE RECOVERY WHAT WOULD
WANT IF YOUR HEART STOPPED
WOULD YOU WANT CP SFLMD.

Maureen says YES.

Willie asks WOULD YOU WANT TUBE
FEEDING TEMPORARILY?

Maureen says SURE.

Willie asks WHAT
YOU WANT INTENSIVE CARE AND
EVERYTHING DONE?

Maureen says YEAH.

Willie says NOW
IMAGINE YOU'RE IN A
VEGETATIVE STATE.
YOU GET A BAD HEAD INJURY.
YOU CAN'T MOVE, CAN'T
COMMUNICATE, SWALLOW, IF
IT'S IRREVERSIBLE WOULD
YOU WANT CPR.

Maureen says NO.

Willie asks TUBE
FEEDING?

Maureen says NO.

Willie asks WOULD
YOU WANT PALLIATIVE CARE?
KEEP ME COMFORTABLE?

Maureen says YEAH.

Willie says NOW
YOU FILL OUT THE DIRECTIVE
AND GIVE ME TWO POINTS.
YOU'VE GIVEN ME A POINT HERE
IF I HAVE A GOOD QUALITY OF
LIFE AND HERE IF I HAVE AN
UNACCEPTABLE QUALITY OF
LIFE.
NOW THE ONLY THING WE HAVE
TO DISCUSS IS THE THIRD
POINT.
AT WHAT POINT DO YOU SAY
MAKE THE SWITCH?

Maureen says YES.

Willie continues AS
LONG AS I CAN DO THE
FOLLOWING, AND WHEN I CAN'T,
LET ME GO.
ESSENTIALLY THAT'S THE --

Maureen says NOW YOU GAVE
THOUGH THE EXAMPLE OF A HEAD
INJURY AND THAT'S A LITTLE
MORE CLEAR CUT.
SOMETIMES WE'RE JUST, WE'RE
89.
WE'RE 92 OR WHATEVER.
YOU KNOW?
AND IT'S NOT THAT WE HAVE --
DO WE HAVE SOMETHING THAT'S
IRREVERSIBLE?
WELL, WE HAVE -- WE'RE FRAIL,
WE'RE ELDERLY.
WHAT THEN?

Willie says WELL,
IN THOSE ILLNESSES IT'S EVEN
EASIER, ACTUALLY WITH
CHRONIC ILLNESSES WHERE IT
COMES CREEPING ALONG LIKE
ALZHEIMER'S, PARKINSONS,
STROKES.
WE KNOW THAT THAT'S
PROGRESSIVE, OVER TIME.
YOU HAVE THE RISK OF
PARKINSONS, STARTS OUT WITH
A SHAKING AND THE NEXT THING
YOU KNOW YOU'RE INCONTINENT.
SO THE CHRONIC ILLNESSES ARE
EASIER.
THE ACUTE ILLNESSES ARE A
PROBLEM.
YOU GET STORIES OF THESE
PEOPLE WITH A HEAD INJURY
AND WAKE UP TEN MINUTES
LATER.

Maureen says NOW ONE OF THE,
AND THE ONLY SO FAR CRITIC
I'VE HEARD FROM ON “LET ME
DECIDE” SAYS THAT THIS ISN'T
SIMPLY ABOUT MAKING CHOICES
FOR YOURSELF.
HE CLAIMS THAT THIS IS ABOUT
PRUNING THE POPULATION OF
THE FRAGILE.

Willie says I READ
THAT, AND I CAME OUT ONE
NIGHT, I THINK IT WAS A
SUNDAY NIGHT, AND I READ
THAT.
SOMEBODY SENT ME AN E-MAIL
AND I FELT ABSOLUTELY SICK.

Maureen says I'M SURE YOU
WOULD.
THAT WOULD HURT TO YOU THINK
THAT SOMEONE THINKS THAT YOU
WANT TO DO THAT.

Willie says I
THINK IT WAS -- I DON'T
THINK THE PERSON READ THE
ARTICLE.
I MEAN IN THE ARTICLE WE
ACTUALLY SAID THAT WE
COMPARED NURSING HOMES WITH
HOSPITAL CARE.
THERE WAS NO DIFFERENCE IN
MORTALITY.
PEOPLE DIED -- IF YOU GET
THEM IN THE NURSING HOME
THEY DIED, IF YOU SENT THEM
TO THE HOSPITAL THEY DIED.
YOU SAVED ABOUT 2,000 BUCKS OR
MORE PER PERSON BY NOT
SENDING THEM TO HOSPITAL.
AND THE QUESTIONS WE RAISED
WERE, WELL WHAT WAS THE
QUALITY OF DYING LIKE?
DID PEOPLE GET THEIR
SYMPTOMS CONTROLLED?
THAT WAS THE QUESTIONS WE
ASKED IN OUR ARTICLE.
WE'VE BEEN RESEARCHING THIS
FOR 15 YEARS.
HAVE PROBABLY DONE ABOUT 24
PEER REVIEWED PAPERS ON THIS
HAVE SPENT MY LIFE
RESEARCHING THIS ISSUE.
AND FOR SOMEBODY TO TURN
AROUND AND TELL ME THAT I'M
DOING THIS TO SAVE THE
SYSTEM MONEY OR TO KILL OFF
OLD PEOPLE I FIND REALLY
OFFENSIVE.

Maureen says YEAH.

Willie continues AND
THIS WAS AN ARTICLE IN THE
“NATIONAL POST.”
I DIDN'T EVEN REPLY.
MY COLLEAGUES ARE WRITING TO
MAJ ME SAYING, YOU KNOW, YOU
SHOULD REPLY TO THIS.
I DIDN'T EVEN GIVE IT -- TO
ME I WOULDN'T EVEN REPLY TO
IT I WAS SO SICK ABOUT THIS!

Maureen says YOU HAVE NO
INTENTION OF SPREADING THIS
TO PEOPLE WITH MULTIPLE
SCLEROSIS --

Willie says OH,
ABSOLUTELY --

Maureen says WELL THEY SHOULD
FILL ONE OUT.

Willie says IT'S
NOT MANDATORY.
BUT HERE'S THE POINT,
MAUREEN.
IF WE DON'T HAVE ADVANCE
DIRECTIVES THEN WHAT HAPPENS
WHEN WE GET TO THE POINT
WHERE WE'RE DISABLED?
WE'VE DONE STUDY AFTER STUDY
SHOWING THAT THE HEALTHCARE
SYSTEM WILL REVIVE YOU.
SO IT'S NOT LIKE -- YOU KNOW
GOOD OLD JOHN PAUL SART,
EVEN NOT MAKING A CHOICE IS
A CHOICE.
THERE IS A DEFAULT OPTION IN
THE SYSTEM AND THE DEFAULT
OPTION IN THE SYSTEM, IF WE
DON'T KNOW YOUR WISHES IS
THAT WE WILL DO CPR AND WE
WILL RESUSCITATE YOU.
SO IT'S NOT LIKE YOU CAN
AVOID THIS DECISION.

Maureen says YEAH.

Willie continues SO
WHO'S GOING TO MAKE THE
DECISION IS THE QUESTION.
DO YOU WANT TO MAKE THE
DECISION OR IS THE
HEALTHCARE PROFESSIONAL
GOING TO MAKE THE DECISION?
OR IS IT A FAMILY MEMBER?
NOW IF THE HEALTHCARE
PROFESSION MAKES THE
DECISION, YOU CAN REASONABLY
PREDICT THAT THEY'RE GOING
TO DO EVERYTHING TO PRESERVE
YOUR LIFE SO IF YOU'RE HAPPY
WITH THAT, GO AHEAD.
NOW, A FAMILY MAKES THE
DECISION.
WHAT HAPPENS IF ONE CHILD
SAYS DO EVERYTHING AND THE
OTHER CHILD SAYS LET THEM
GO?
THE DECISION-MAKING AROUND
THE PARENT'S DEATH CAN
DIVIDE THE FAMILY FOREVER.

Maureen says YEAH.

Willie says AND
THAT'S NOT WHAT I WOULD
WANT.

Maureen says I BET YOU'VE
SEEN THAT --

Willie says WE HAD
A FIST FIGHT IN OUR HOSPITAL
RECENTLY BETWEEN TWO
CHILDREN.
I MEAN I'VE SEEN FAMILIES
AFTER THE DEATH OF A PARENT
WALK BOTH WAYS AND NEVER
SPEAK AGAIN OVER THE
DECISION-MAKING.

Maureen says SO THIS TAKES IT
OUT OF THEIR HANDS.
THEY CAN ALL GO AWAY
COMFORTABLE THAT THE
DECISION WAS YOURS.

Willie says WE
JUST DID A SURVEY OF
VETERANS WHICH WAS JUST
PUBLISHED.
98 percent OF CANADIAN VETERANS WHO
ARE SENT A COPY OF THIS
BOOKLET, BY VETERANS CANADA,
NOT BY US, THEY WERE CALLED
UP AND SAID WHAT DO YOU
THINK?
98 percent OF VETERANS SAID THIS
WAS A GOOD IDEA, SHOULD BE
OFFERED TO VETERANS.
NOW I THINK IT SHOULD BE
OFFERED TO THE GENERAL
PUBLIC.
WE HAVE SURVEY AFTER SURVEY
AFTER SURVEY, SHOWING THAT
MORE THAN 90 percent OF PEOPLE SAY
THIS IS A GOOD IDEA.
MAY NOT BE FOR ME, BUT IT'S
A GOOD IDEA, PEOPLE SHOULD
HAVE THE CHOICE.
AND IT'S CALLED “LET ME
DECIDE.”
NOW TO SUGGEST WE'VE DONE
THIS TO SAVE MONEY CAN KILL
PEOPLE OFF I FIND REALLY, I
JUST, I JUST, I JUST -- I
DON'T EVEN TO WANT GO -- I
MEAN, I JUST FIND IT SO
INSULTING AND SO AGAINST THE
WHOLE PHILOSOPHY OF WHAT
WE'VE BEEN TRYING TO DO.
I MEAN, WE'RE THE ONES WHO
ARE NOW, WE'RE NOW TALKING
ABOUT THE CARE OF THE
ELDERLY IN NURSING HOMES.
SYMPTOM CONTROL.
PALLIATIVE CARE.
WE'VE WRITTEN PROTOCOLS AND
TRIED TO GET MONEY TO PUT
PALLIATIVE CARE IN NURSING
HOMES AND TRIED TO MAKE SURE
THAT THE ELDERLY GET THE
CARE THEY WANT.
NOT HIGH-TECH CARE,
EXPENSIVE TECHNOLOGY.
IT DOESN'T BENEFIT THEM.
THEY DON'T LIVE LONGER.
WE'RE SAYING THAT SENDING
PEOPLE TO DIE IN ACUTE CARE
HOSPITALS IS NOT THE WAY TO
GO.
PEOPLE TO WANT DIE IN THEIR
HOMES, THEY WANT TO DIE IN
NURSING HOMES, THEY WANT
SYMPTOM RELIEF, THEY WANT
PALLIATIVE CARE, THEY WANT
HANDS-ON NURSING CARE.
THEY DON'T WANT CAT-SCANS
AND MRIes AND EXPENSIVE
TECHNOLOGY, THEY WANT GOOD,
SOLID NURSING CARE.
AND THAT'S WHERE WE'RE
SAYING THE SYSTEM SHOULD BE
GOING.
TO TELL US THAT WE'RE THE
ONES -- I MEAN, I JUST FIND
IT SO OFFENSIVE.

Maureen says ALL RIGHT, ON
THAT NOTE LET'S GO TO JANE
IN OTTAWA.
HI JANE.

Jane says HI.

Maureen says HI.
AND YOUR QUESTION FOR
Dr. MOLLOY?

Jane says I WANTED TO ASK
Dr. MOLLOY HOW COMMON
CHRONIC KIDNEY FAILURE IS IN
THE ELDERLY, WHAT TESTS ARE
ESSENTIAL IN DIAGNOSING IT,
AND HOW IS IT MANAGED?

Willie says UM, I
THINK THAT -- I DON'T KNOW
THE NUMBERS, BUT I BELIEVE
THAT THE NUMBER OF PEOPLE
WITH CHRONIC KIDNEY FAILURE,
RENAL FAILURE WHO NEED
DIALYSIS IS EXPLODING.
BECAUSE, I THINK, OF THE
NUMBER OF ELDERLY DIABETICS.
I THINK DIABETICS GET
PROBLEMS WITH -- MOST PEOPLE
WHO LOSE THEIR LEGS ARE
DIABETICS, BECAUSE OF THE
VASCULAR DISEASE AND MOST
PEOPLE ON DIALYSIS ARE
ELDERLY DIABETICS.
THE TEST FOR, WE CAN DO A
SIMPLE BLOOD TEST CALLED A
CREATNIN TEST AND THE
CREATNIN IS A BYPRODUCT
CLEARED FROM MUSCLE
BREAKDOWN AND STUFF, IT'S
CLEARED BY THE KIDNEYS AND
WHEN THE KIDNEYS TART TO
FAIL, THE LEVELS RISE SO YOU
CAN START TO SEE IT IN THE
ELDERLY.
YOU CAN DO A UREA OR
CREATNIN.
SIMPLE BLOOD TESTS OR YOU
CAN COLLECT URINE FOR 24
HOURS AND YOU CAN TELL HOW
MUCH CREATNIN HAS BEEN
CLEARED SO IT'S QUITE A
STRAIGHT FORWARD TEST TO
DIAGNOSE KIDNEY FAILURE.
YOU CAN ALSO LOOK AT
DIABETICS AND THEY LEAK
PROTEIN IN THEIR URINE SO
YOU CAN TELL IF THEIR
KIDNEYS ARE IN TROUBLE.
AND WE NOW, INTERESTINGLY, A
RECENT DISCOVERY IN
McMASTER, A BIG STUDY THEY
DID, BY ACCIDENT THEY
DISCOVERED THAT THESE
INHIBITORS SEEM TO PROTECT
THE KIDNEYS, PARTICULARLY IN
DIABETICS --

Maureen asks WHAT ARE THOSE?

Willie says THESE
ARE PILLS WE USE FOR BLOOD
PRESSURE.
AND WE NOW HAVE FOR THE
FIRST TIME TREATMENTS THAT
WILL SEEM TO PREVENT KIDNEY
FAILURE IN DIABETICS

Maureen says THAT'S GREAT
NEWS SO EVEN IF YOUR BLOOD
PRESSURE DOESN'T NEED TO BE
CONTROLLED, PERHAPS IF
YOU'RE DIABETIC YOU NEED TO
BE ON THOSE PILLS.

Willie says YEAH,
BUT THE TROUBLE WITH DIP
BEAT TIS IS MOST PEOPLE WHO
HAVE IT DON'T EVEN KNOW IT
AND THEY'RE NOT DIAGNOSED
AND THE OTHER TROUBLE IS
THAT PEOPLE WHO ARE DIABETIC
DON'T TAKE CARE OF
THEMSELVES.
THEY DON'T FOLLOW THEIR
DIETS, THEY DON'T GET THEIR
CHECKS REGULARLY AND PEOPLE
JUST SAY “OH, THE DOCTOR'S
TAKING CARE OF IT.
IT'S GOT NOTHING TO DO WITH
ME.”
DIABETES IS A SERIOUS
ILLNESS AND PEOPLE REALLY
NEED TO ATTEND TO IT.

Maureen says ALL RIGHT, JANE,
THANK YOU FOR THE QUESTION.
SHERRY IS IN PICKERING.
HI SHERRY.

Sherry says HI.

Maureen says HI.

Sherry says I'D LIKE
TO SAY THAT I THINK THIS IS
A WONDERFUL PROGRAMME AND
THAT THERE'S NOT ENOUGH OF
THIS INFORMATION BEING
SPREAD TO PEOPLE SUCH AS
MYSELF, WHO CAN ASK A
QUESTION.
I JUST RECENTLY LOST MY
MOTHER IN A NURSING HOME
FROM A VERY RARE
NEUROLOGICAL DEBILITATING
ILLNESS CALLED PROGRESSIVE
SUPERNUCLEAR PALSY.
IT'S QUITE RARE
AND IT WAS SIMILAR TO
ALZHEIMER'S IN THAT IT MEANS
SHE WAS SICK FOR TEN YEARS
WITH IT.
MY QUESTION IS TO Dr. MOLLOY,
DO YOU KNOW OF ANY -- AND
ALSO, DUDLEY MOORE WAS JUST
RECENTLY DIAGNOSED WITH THIS
RARE ILLNESS.
IS THIS FAMILIAR TO YOU?

Willie says YEAH.

Sherry continues DO YOU KNOW OF
ANY NEW DEVELOPMENTS THAT
ARE COMING ALONG?
BECAUSE IT'S SO UNKNOWN THAT
THERE'S NO TREATMENT,
THERE'S NO MEDICINE, THERE'S
NOTHING THAT PEOPLE CAN DO
FOR IT.
YOU JUST LOSE YOUR FAMILY
MEMBER SLOWLY OVER TIME.

Willie says IT'S A
TOUGH DISEASE.
I TELL YOU WHY I THINK
THAT'S SUCH A TOUGH DISEASE.
SUPERNUCLEAR PALSY PRESENTS
WITH THE INABILITY OF THE
PERSON -- THEIR EYES, IT'S
CALLED EXTRA OCCULAR
MOVEMENTS.
THEY CAN'T LOOK DOWN.
THEIR EYES CAN'T LOOK DOWN
SO THEY LOOK -- THEY HAVE
THIS STARING KIND OF LOOK.
DID YOUR MOM LOOK LIKE THAT,
THAT SHE WAS STARING ALL THE
TIME?

Sherry says YEAH, AND IT GOT
WORSE ALL THE TIME.

Willie says AND
THEY CAN'T LOOK DOWN, AND
THEY LOOK LIKE PARKINSONS
BUT THE KILLER WITH THIS
DISEASE IS THE SWALLOWING
PROBLEMS AND THEY TALK LIKE
THAT AND THEY'RE CONSTANTLY
CLEARING THEIR THROAT
BECAUSE THEY HAVE PROBLEMS
WITH SWALLOWING.
AND IT'S A BRUTAL DISEASE
BECAUSE YOUR SWALLOWING GOES
EARLY AND YOU HAVE THE
QUESTION -- DID YOU HAVE THE
QUESTION ABOUT TO TUBE FEED
OR NOT?
DID YOUR
MOM HAVE PROBLEMS
SWALLOWING?
WAS SHES A PIR RATING?

Sherry says YES, AND IT GOT
WORSE AND AT THE VERY END WE
COULDN'T GIVE HER FOOD OR
WATER AT THE VERY END.
IT WAS PALLIATIVE CARE.
EVERYTHING WAS CHOKING HER,
LITTLE DRIPS OF WATER DOWN
HER THROAT.
WE ALMOST CHOKED HER AT THE
END BECAUSE WE WERE GIVING
HER A LITTLE DRIP OF WATER.

Willie says DID
SHE SOUND HOARSE LIKE THAT
WITH THE --

Sherry says YES.

Willie says I CAN
HEAR THEM IN THE WAITING
ROOM.
AND SHE PRESENTED FALLING,
RIGHT?

Sherry says YES, THAT'S HOW
IT STARTED.

Willie says SHE
CAN'T LOOK DOWN, SHE'S
TRIPPING OVER THINGS.
BUT COGNITIVELY STAYS INTACT
RIGHT TO THE END WHICH IS
THE KILLER.

Maureen says SO THEY KNOW
WHAT'S HAPPENING TO THEM

Willie says RIGHT?
YOUR MOM DIDN'T LOSE IT FOR
A LONG TIME?
SHE WAS FALLING --

Sherry says THAT'S RIGHT, BUT
IT WAS DECEIVING BECAUSE SHE
COULDN'T SPEAK.
SHE LOST HER ABILITY TO
SPEAK --

Willie asks BUT
SHE WAS THERE RIGHT?

Sherry says SHE WAS THERE,
AND I KNEW SHE WAS THERE BUT
A LOT OF THE STAFF AT THE
NURSING HOME DIDN'T BECAUSE
THEY THOUGHT SHE DIDN'T KNOW
WHAT SHE WAS TALKING ABOUT
BECAUSE SHE COULDN'T
COMMUNICATE BACK TO THEM.
THAT'S THE HARDEST PART.

Willie says THAT'S
A TOUGH DISEASE.

Sherry asks DO YOU KNOW OF
ANYTHING THAT'S BEING DONE
THIS THIS --

Willie says NOT
MUCH.
THE TROUBLE IS IT'S QUITE
RARE.
AND NO, I DON'T THINK WE --
WELL, I'M NOT THAT UP ON, TO
BE HONEST WITH YOU, BUT I
DON'T KNOW OF ANYTHING NEW
IN THAT DISEASE BECAUSE IT'S
SO RARE.
WHAT WE CAN DO FOR -- YOU
KNOW, THE TROUBLE IS THAT
WE'RE DEALING WITH THE BIG
COMMON ONE, WHICH IS THE BIG
ONE, IS THE ALZHEIMER'S
AND THE STROKES, BUT THE
SUPERNUCLEARS ARE QUITE RARE
BUT NOW THAT YOU MENTION IT,
WE SHOULD REALLY START
LOOKING AT THOSE SMALL
GROUPS.
WE'RE GETTING BETTER NOW.
WE HAVE ALL OF THE -- ALL OF
THE CANADIAN INVESTIGATORS
HAVE JOINED TOGETHER.
WE HAVE A GROUP CALLED C5-OR,
AND WE WORK TOGETHER SO IT
WOULD BE POSSIBLE FOR US TO
DO STUDIES ON THESE RARE
ONES NOW, SO THERE'S ABOUT 30
OR 40 OF US.
ALL OF US IN THIS AREA, WE
HAVE A SORT OF A GROUP SO,
WE COULD -- ALL OF OUR
SUPERNUCLEAR PAL SEES -- I
COULD NEVER DO RESEARCH ON
IT BECAUSE I WOULDN'T SEE
ENOUGH --

Maureen says IN HAMILTON YOU
WOULDN'T HAVE ENOUGH
PATIENTS.

Willie says BUT WE
COULD ACROSS THE COUNTRY.

Maureen asks IS IT A
NEUROLOGICAL DISEASE THE WAY
PARKINSON'S IS --

Willie says YEAH.
THEY GET DEATH OF THE
NUCLEI.
SEE, YOU HAVE NUCLEI OF THE
CRANIAL NERVES AND WHAT
HAPPENS IS THAT THE NERVES
THAT A REGULATING THE
CRANIAL NERVES DIE OFF
SUPERNUCLEAR.
IT'S THOSE NUCLEAR THAT GO,
SO THE FACE, BUT MAINLY
SWALLOWING GOES, AND THE
LOWER LIMBS.
THEY LOSE THE EYES SO THEY
CAN'T LOOK DOWN AND THE LEGS
KIND OF BECOME STIFF AND YOU
SEE THAT THEY TRIP AND FALL.
THEY COME IN FULL OF
BRUISES.

Maureen says NOW THERE'S NO
EVIDENCE THAT IT RUNS IN
FAMILIES OR HAS --

Willie says NOT
THAT I KNOW OF.
NOT THAT I KNOW OF.

Maureen says WELL THAT'S
GOOD.

Willie says WE
DON'T KNOW WHAT CAUSES IT.
I JUST SAW SOMETHING
RECENTLY.
PARKINSON'S MIGHT BE CAUSED
BY PESTICIDES.

Maureen says REALLY!
THE ENVIRONMENTAL --
IT DOES KEEP
CREEPING BACK.
SAME WITH MULTIPLE CHER ROSE
SIS -- ALTHOUGH M.S. LOOKS
LIKE AN AUTO IMMUNE DISEASE
NOW BUT THEY STILL KEEP
COMING BACK TO THE
ENVIRONMENTAL FACTORS.

Willie says I READ
THAT IN “THE HAMILTON
SPECTATOR.”
(LAUGHING)
INTERESTING, YOU KNOW, THE
CAUSE OF THE NEUROLOGICAL
DISEASES.
WE HAVE NOW TRACKED
ALZHEIMER'S BACK TO
CHILDHOOD.
WE NOW KNOW THAT CHILDREN
WHO ARE NOT VERY
WELL-NOURISHED IN CHILDHOOD
ARE MORE LIKELY TO GET
ALZHEIMER'S.
WE THINK THE DEVELOPMENT OF
THE MEMORY IS THE FINAL PART
OF BRAIN DEVELOPMENT AND IF
THERE WAS PROBLEMS WITHIN
THE -- BASICALLY IN EUTERO
OR EVEN IN YOUNG CHILDHOOD
THAT THE BRAIN DOESN'T FULLY
DEVELOP AND THEY ACTUALLY
HAVE ALZHEIMER'S, AND WE'VE
KNOWN FOR MANY YEARS PEOPLE
WITH ALZHEIMER'S HAVE LESS
EDUCATION THAN THOSE WHO
DON'T GET IT AND IT COULD BE
THAT THOSE CHILDREN ACTUALLY
HAD ALZHEIMER'S WHEN THEY
WERE IN SCHOOL.
WE'VE TRACKED IT RIGHT BACK
NOW --

Maureen asks REALLY?!

Willie says YEAH
SO, MAYBE FOLATE IN
PREGNANCY AND THOSE KINDS OF
THINGS.
I BELIEVE WE CAN TRACK IT
RIGHT BACK TO BIRTH.

Maureen says YOU KNOW WHAT I
ALSO READ?
IF YOU WERE A CHILD IN A
LARGE FAMILY YOU'RE MORE AT
RISK.
I'M ONE OF SIX!

Willie says YEAH,
I'M YOUNGEST OF NINE.

Maureen says OKAY.
BUT DOES THAT -- I MEAN, ONE
THEORY ABOUT THAT IS THAT
YOUR PARENTS, BECAUSE THEY
HAD SO MANY KIDS, DIDN'T
HAVE TIME TO GIVE YOU EACH
INDIVIDUAL ATTENTION AND
WORK ON YOUR ABCs WITH YOU
BUT --

Willie says I
REMEMBER WHEN I WAS ABOUT
TEN, I REMEMBER SOMEBODY
ONCE CAME TO OUR HOUSE FOR
DINNER, AND MY MOTHER SAID
“I DON'T LIKE PEAS.”
AND I WAS LIKE...
I DIDN'T HAVE THE CONCEPT
THAT THERE WAS FOOD THAT YOU
DIDN'T LIKE.
YOU KNOW, WITH NINE KIDS YOU
PUT THE FOOD ON THE TABLE IT
GOES LIKE...
(LAUGHING)

Maureen says YOU ATE
EVERYTHING.

Willie says IF
SOMEONE SAID “I DON'T LIKE
THAT” IT WAS “GIVE IT TO ME!

I DIDN'T HAVE THE CONCEPT
THAT THERE WAS FOOD YOU
DIDN'T LIKE.
I'LL NEVER FORGET THAT.

Maureen says YOU DON'T HAVE
TO MIND YOUR Ps AND Qs WITH
Dr. MOLLOY THIS AFTERNOON.
HE'S HERE TO ANSWER
QUESTIONS ABOUT THE ELDERLY,
CARING FOR THE ELDERLY,
ALZHEIMER'S DISEASE, ALL
KINDS OF ISSUES AROUND
AGING.
SO GIVE US A CALL.

A caption appears on screen showing two phone numbers.

Maureen continues IN TORONTO 416-484-2727
LONG DISTANCE DIAL
1-888-411-1234
AND YOU CAN SEND IT BY E-MAIL TO
MORETOLIFE AT TVO.ORG
GENIE IS IN
BRACEBRIDGE.
HI GENIE?

Genie says HI.

Maureen says HI.

Genie says I HAVE QUESTION.
MY MOTHER, ORIGINALLY THEY
THOUGHT SHE HAD ALZHEIMER'S,
BUT THEY DID A CAT-SCAN AND
AN E.E.G. AND THE
GERIATRICIAN FEELS SHE HAS
MULTI INFARC DEMENTIA.

Willie says YEAH.

Genie says AND I'M JUST
WONDERING -- I UNDERSTAND
THAT'S LITTLE MINI STROKES
IN THE BRAIN CAUSING BRAIN
DAMAGE.
AND I'M WONDERING IF THERE'S
ANY MEDICATION OR VITAMINS
THAT CAN BE GIVEN THAT CAN
STOP THESE STROKES FROM
OCCURRING AND KEEP THIS
DEMENTIA FROM PROGRESSING OR
IS IT GOING TO KEEP
PROGRESSING?

Willie says JANINE,
I THINK WE DON'T ABSOLUTELY
UNDERSTAND THIS ONE AS WELL
AS WE DO HEART DISEASE, BUT
I THINK THE BEST WAY TO
DISCUSS THIS WOULD BE LIKE
TO CONSIDER HEART DISEASE OR
ARTHLEROSCLEROSIS, THERE'S
DAMAGE TO THE BLOOD VERY
WELL SELLS IN THE BRAIN AND
WE KNOW THAT PEOPLE WITH
DIABETES OR ANGINA OR HEART
DISEASE ARE MORE AT RISK.
WHAT DO WE KNOW ABOUT HEART
DISEASE?
FIRST YOU'VE GOT TO CONTROL
YOUR BLOOD PRESSURE, MAKE
SURE YOUR CHOLESTEROL AND
TRIGLYCERIDES AREN'T TOO
HIGH.
IF YOU'RE OVER IS WEIGHT YOU
HAVE TO LOSE A FEW POUNDS.
AND THAT WOULD BE THE
GENERAL MEASURES YOU WOULD
TAKE FOR SOMEBODY WHO HAS
MULTI INFARC DEMENTIA.
WE RECOMMEND THE PEOPLE GO
INTO THE PHARMACIES, YOU
KNOW, THE FARM CEASE WHERE
YOU CAN STICK YOUR ARM IN
THE MACHINE?
AND WE RECOMMEND THEY KEEP A
LITTLE DIARY OF BLOOD
PRESSURES FOR US.
AND THE BLOOD PRESSURE
SHOULD BE REGULARLY BELOW
160 ON 90.
160 IS THE TOP NUMBER AND
190 IS THE BOTTOM NUMBER.
AND YOU SHOULD MAKE SURE
THAT IF IT'S REGULARLY ABOVE
THOSE TWO, YOU DEFINITELY
NEED TREATMENT.
ESPECIALLY IF YOU HAVE MULTI
INFARC DEMENTIA.
NOW YOU DON'T WANT IT DOWN
AROUND 100, BECAUSE YOU
WON'T HAVE ANY ENERGY BUT IF
YOU CAN GET IT AROUND 120, 1
30, THAT'S VERY GOOD.
THAT'S VERY IMPORTANT.
LOOK AT THE CHOLESTEROL,
TRIGLICERIDE, NOT OVERWEIGHT,
IF YOU'RE DIABETIC IT HAS TO
BE CONTROLLED AND BABY
ASPIRIN PROBABLY WOULD BE
RECOMMENDED, ESPECIALLY IF
YOU DIDN'T HAVE ALLERGIES TO
IT OR BLEEDING ULCERS.
A BABY ASPIRIN WE WOULD USE
AND IF YOU WERE GETTING WHAT
WE CALL TRANSIENT ESCHEMIC
ATTACKS, WHICH IS WHERE A
PERSON WOULD LOSE VISION FOR
A SECOND OR GET NUMBNESS IN
THEIR FACE OR HAVE PROBLEMS
SPEAKING OR GET PINS AND
NEEDLES IN THEIR HAND, IT'S
LIKE A BABY STROKE OR A MINI
STROKE BUT IT PASSES OFF.
IF YOU'RE CONTINUING TO GET
THOSE AND YOU'RE ON THE
ASPIRIN, THEN YOU NEED TO GO
ONTO SOMETHING LIKE
TICHLOPEDINE OR ANOTHER DRUG
THAT WOULD PREVENT THESE.
IT'S GOOD MEDICAL
MANAGEMENT.
GOOD HEALTHCARE.
BLOOD PRESSURE, LIPPIDS THAT
SORT OF STUFF.

Maureen says DO YOU LIVE WITH
IT AS LONG AS PEOPLE LIVE
WITH ALZHEIMER'S?
IS IT PROGRESSIVE --

Willie says IT'S
PROGRESSIVE BUT VERY SLOW IF
YOU CAN GET THOSE THINGS
UNDER CONTROL.
IF YOU GET THE BLOOD
PRESSURE DOWN, RISK FACTORS
OUT OF THE WAY, TAKE THE
BABY ASPIRIN -- WE HAVE
PEOPLE IN THE CLINIC, I JUST
SAW SOMEBODY THE OTHER DAY
WHO MUST BE COMING TO US FOR
SEVEN YEARS AND IT'S VERY
SLOWLY PROGRESSIVE BUT WE'VE
GOT EVERYTHING CONTROLLED.
ESPECIALLY IF YOU CAN FIND
THAT THE PERSON HAD HIGH
BLOOD PRESSURE OR SOMETHING
AND YOU CAN CONTROL THAT
THEN YOU YOU'LL FIND THEY'LL
DO QUITE WELL.

Maureen asks SHOULD PEOPLE IN
YOUR OPINION WHO HAVE
ALZHEIMER'S OR OTHER KINDS
OF DEMENTIA, SHOULD THEY
CONTINUE TO DRIVE?
HOW DO YOU FEEL ABOUT THAT?

Willie says UM,
DRIVING IS A HUGE ISSUE.
LIKE I HAVE A -- AID MAN IN
YESTERDAY AND HE JUST KEEPS
ON ABOUT DRIVING.
WHEN AM I GOING TO GET MY
LICENSE BACK?
WHEN AM I GOING TO GET MY
LICENSE BACK?

Maureen asks OH HE DOESN'T
HAVE IT NOW?

Willie says HE
LOST THE LICENSE.
AND IT'S THE FIRST MAJOR
LOSS.

Maureen asks WHAT HAPPENED?
DID HE HAVE AN ACCIDENT?

Willie says HE HAD
TO STOP DRIVING BECAUSE OF
PARKINSONS AND HE'S VERY
SLOW AND HIS REACTION TIMES
ARE VERY SLOW AND HE FAILED
THE TEST.
YOU NEVER STOP A PERSON WHO
HAVE ALDZ, BECAUSE THE
DIAGNOSIS IS NOT ENOUGH.
PEOPLE WITH ALZHEIMER'S CAN
DRIVE QUITE SAFELY AND DO SO
WELL.
WHAT WE DO, WE TEND TO DO IN
THE CLINIC IS WE FOLLOW
PEOPLE AND WE ASK THE
CAREGIVERS.
NOW THE PROBLEM IS THE
CAREGIVER IS ON THE ONE HAND
YOU'VE GOT THE NERVOUS --
THE DAUGHTER COMES IN WITH
THE DAD AND SAYS “HE
SHOULDN'T BE DRIVING,” YOU
KNOW?
AND YOU HAVE TO BE CAREFUL
WITH THEM.
THIS IS OUR FINAL CHANCE TO
GET HIM, SHE NEVER LIKED HIM
AND SHE'S GOING TO GET HIM
NOW AND THE KNIFE IN THE
BACK, YOU SEE?
AND THEN THERE'S THE OTHER
ONE WHERE THE WIFE NEEDS HIM
TO DRIVE.
SHE NEEDS HIM.
IF SHE DOESN'T HAVE HIM, SHE
CAN'T GET THE GROCERIES ONCE
A WEEK.
SO YOU SAY TO HER HOW'S THE
DRIVING?
“FINE.”
HE'S GREAT.
GREAT DRIVER.
FEEL SAFE AS A HOUSE.
SO YOU HAVE TO BE CAREFUL.
SO WHEN WE SUSPECT THE
DRIVING'S A PROBLEM OR THE
MEMORY'S STARTING TO GO, WE
GET A DRIVING TEST.
WE HAVE A CHARACTER IN
HAMILTON WHO DOES A GREAT
DRIVING TEST FOR US.
HE CHARGES US ABOUT 100 BUCKS OR
SOMETHING.
I'M NOT SURE, BUT HE GIVES
US A PRINT-OUT AND HE TELLS
US, RECOMMENDS NO DRIVING IN
BAD WEATHER, NO DRIVING AT
NIGHT, NO HIGHWAY DRIVING.
THE MOST IMPORTANT THING IS
NEVER DRIVE ON YOUR OWN WHEN
YOU HAVE ALZHEIMER'S BECAUSE
WHAT HAPPENS WITH THE
ALZHEIMER'S ACCIDENT, THE
YOUNG PEOPLE, THEY ALWAYS
SEE THE THING COMING.
THEY GO OUT OF CONTROL,
THEY'RE SPEEDING, THEY GO
OFF THE HIGHWAY, HIT THE
TREE OR HIT THE OTHER CAR.
THE OLDER PERSON NEVER SEES
THE OTHER PERSON COMING.
IT'S ALL LOW SPEED
COLLISIONS.
THEY'RE GOING THROUGH A STOP
SIGN OR THEY'RE GOING
THROUGH A HEAD LIGHT THAT
THEY DIDN'T SEE. THAT'S
THE TYPICAL ALZHEIMER'S
ACCIDENT.

Maureen says SO THEY'RE MORE
LIKELY TO BE HIT THAN HIT IN
THAT SITUATION.

Willie says NEARLY
ALWAYS.
NEARLY ALWAYS.
AND THEY'VE GONE THROUGH A
RED LIGHT, GONE THROUGH A
STOP SIGN AND IF THEY DON'T
GET HIT THEY CAUSE ANOTHER
ACCIDENT.
AND IT'S ALL LOW SPEED AND
NOT BIG DANGER OF GETTING
KILLED.
SO WITH THEM, YOU HAVE TO
HAVE SOMEBODY WITH THEM,
PRIMING THEM ALL THE TIME.
THAT'S WHY WE SHOWED IN OUR
CLINIC THAT PEOPLE DRIVING
ON THEIR OWN WERE TWICE AS
MUCH AT RISK AS WHEN THEY
WERE DRIVING WITH A
PASSENGER.

Maureen says RIGHT.

Willie continues SO
WHEN THEY HAD THE PASSENGER,
THE PASSENGER WAS SAYING
“NOW DAD, WE'RE COME
TOGETHER STOP SIGN, WE'LL
STOP HERE AND THEN WE'LL
TAKE THE LEFT.”
AND THEY SHOULDN'T HAVE THE
RADIO ON, THEY SHOULDN'T BE
HAVING DOGS RUNNING AROUND
THE CAR AND STUFF.

Maureen says NO DISTRACTIONS.

Willie says YEAH,
AND TEND TO DRIVE TO THE
GOLF COURSE, AND THE CURLING
RINK OR THE SHOPPING PLACE,
AND IF THEY CAN DO THAT
THEY'RE PROBABLY MUCH BETTER
OFF.
BUT NOT THE HIGHWAY, NOT THE
BIG TRIP, YOU KNOW, DOWN TO
FLORIDA.
YOU FIND A LOT OF TIME THE
THEY PRESENT WITH THE DRIVE
TO FLORIDA.
THEY GET LOST COMPLETELY.

Maureen says AND THAT'S THE
FIRST SIGN THAT MAYBE --

Willie says THE
FAMILY MEMBERS SAY THEY GET
TO FLORIDA, DON'T KNOW THE
WAY AROUND, WIFE REALIZES
THEN -- OR THEY GET LOST
SOMEWHERE AND REFUSE TO STOP
DRIVING.

Maureen says IT'S HARD.
IT'S A TOUGH ONE.

Willie says BUT IF
YOU'RE CONCERNED, GET A
DRIVING TEST.

Maureen says ASK FOR IT.

Willie continues
BECAUSE I CAN'T SIT IN A
DOCTOR'S OFFICE AND TELL
WHAT KIND OF A DRIVER YOU
ARE.
IF WE'RE CONCERNED WE GET A
DRIVING TEST AND WE SEND IT
TO THE MINISTRY AND THEN
EVERYBODY KNOWS.

Maureen says THEN THEY DEAL
WITH IT.
ALL RIGHT,
KATERINA IS ON THE LINE FROM
BLACKSTOCK.
HI, KATERINA?
HI, KATERINA, ARE YOU THERE?
NO?
ALL RIGHT.
E-MAIL HERE FROM M.Q. WHO
HAS A MEMORY PROBLEM BECAUSE
OF AN ACCIDENT THAT THEY
SUFFERED.
ANYTHING YOU CAN DO TO
IMPROVE THE MEMORY OFF GET A
BLOW TO THE HEAD OR
SOMETHING?

Willie says I
THINK GOOD DIETARY STUFF,
AND I DON'T KNOW IF DRUGS
LIKE ARISEPT WOULD
HELP THESE PEOPLE.
IT DOES HELP ALZHEIMER'S
PEOPLE AND THAT IS A MEMORY
PROBLEM, IT MIGHT BE
INTERESTING TO TRY SOMETHING
LIKE THAT I'M NOT THE HEAD
INJURY GUY.
I MEAN, THERE'S WHOLE
PROGRAMMES WITH THAT, IT'S
CALLED ACQUIRED BRAIN INJURY
THEY CALL IT NOW, BUT THERE
ARE THINGS MORE AND MORE.
IT'S VERY INTERESTING, YOU
KNOW?
WE CAN FIX THE HEART.
YOU KNOW, YOU GET A HEART
ATTACK, WE CAN SUPPORT YOU.
YOUR LUNGS, YOUR KIDNEY,
YOUR LIVER.
BUT YOU GET THESE YOUNG GUYS,
THESE HOCKEY PLAYERS WITH A
CONCUSSION, AND WHAT DO THEY
TAKE?
DO THEY TAKE AN ASPIRIN?
DO THEY TAKE A VITAMIN?
WE DON'T KNOW HOW TO SUPPORT
THE BRAIN.

Maureen says WE DON'T KNOW.

Willie says NO.
AND ALL THESE YOUNG GUYS
REGULARLY GETTING -- I'D
LOVE TO DO A STUDY WITH THE
NHL.

Maureen says YEAH.
IT'D BE NICE IF WE COULD
PREVENT THOSE INJURIES IN
THE FIRST PLACE.
I SAY AS A HOCKEY MOM.

Willie says I
AGREE.

Maureen says LET'S GO TO
ANNIE IN BURLINGTON.
HI ANNIE.

Annie says HI.

Maureen says HI.
WHAT'S YOUR QUESTION?

Annie says WELL, I HAVE A
SHAKIN' IN MY HANDS, AND
IT'S QUITE ANNOYIN' AT
TIMES.
PEOPLE'LL DRAW ATTENTION TO
IT.
NOT ALWAYS, BUT QUITE A LOT.
PLUS I HAVE A KIND OF
NERVOUS TICK IN MY FACE AT
TIMES.
NOW, I DO HAVE A TOUCH OF
ALZHEIMER'S AND I TAKE
PUFFERS, BUT I'M WONDERIN'
IF THAT'S THE ON-SET OF A
STROKE.

Willie says ANNIE?

Annie says YES?

Willie asks THE
SHAKE, IS IT IN ONE HAND OR
TWO HANDS.

Annie says TWO HANDS.

Willie asks DID IT
COME ON TWO HANDS AT THE
SAME TIME?

Annie says MOST OFTEN BUT
NOT ALL THE TIME, NO.

Willie asks CAN
YOU STOP IT?

Annie says BY PRESSIN' MY
HANDS TOGETHER?

Willie says NO,
BUT WHEN PEOPLE DRAW YOUR
ATTENTION TO IT CAN YOU
USUALLY STOP THEM?

Annie says WELL I USUALLY
HIDE THEM.

Willie says I SEE.
IS IT A SLOW SHAKE, ANNIE?

Annie says NO, IT'S QUITE A
FAST SHAKE.

Willie says IS IT?
DOES YOUR THUMB GO LIKE
THAT?

Annie says NO.

Willie asks IS IT
WHAT I CALL A PILL ROLLING
TREMER LIKE THAT?
LIKE ROLLING A PILL?
THE PARKINSONS ONE IS A REAL
SLOW SHAKE LIKE THAT AND
OFTEN COMES ON IN ONE HAND
FIRST AND ONE LEG AND GOES
TO THE OTHER SIDE BUT
WOULDN'T GO TO TWO HANDS.
HOW LONG HAVE YOU HAD,
ANNIE?

Annie says I'D SAY OFF AND
ON FOR ABOUT A YEAR.

Willie asks NOW
HAVE YOU GOT A SHAKE IN THE
HEAD?

Annie says NO.

Willie asks ANY
FAMILY HISTORY?
MOTHER HAVE IT OR AUNTS HAVE
IT --

Annie says NO I DO HAVE A
COUSIN THAT'S GOT PARKINSONS
BUT I ASKED MY DOCTOR ABOUT
THAT AND SHE SAID IT WASN'T
HEREDITARY.

Willie asks AND DO
YOU TAKE BILLS FOR THE
ASTHMA IN THE CHEST?

Annie says YES, I DO -- NO,
I DON'T TAKE PILLS FOR THAT
NO, I TAKE PUFFERS.

Willie asks DO
THEY MAKE IT WORSE?

Annie says I DON'T KNOW.
I HAVE TO TAKE FOUR PUFFERS
A DAY, TWICE ON EACH OF
THEM.

Willie asks DO YOU
DRINK A LOT OF TEA?
A LOT OF COFFEE?

Annie says WILL DRINK A LOT
OF TEA.

Willie says TRY
THE DECAF TEA AND SEE WHAT
HAPPENS TO THE SHAKING.

Annie says ALL RIGHT.

Willie says IT
MIGHT BE SOMETHING TO TRY.
DID YOU SHOW THE DOCTOR THE
TREMOR?
THE SHAKE?

Annie says YEAH, I SHOWED
HER.
SHE DIDN'T SEE IT AT ITS
WORST BUT SHE DID SEE IT AND
SHE SAID NO, IT'S NOT MUCH.

Willie says NOT
MUCH?
AND YOU'RE EMBARRASSED ABOUT
IT, HUH?

Annie says YEAH, I'M KIND OF
EMBARRASSED ABOUT IT.
LIKE, MAMA LIVED UNTIL SHE
WAS NEARLY 91 ALTHOUGH MY
DADDIED AT 72, AND HE HAD
LUNG CANCER BUT I HAVE THE
EMPHESEMA, WHICH IS NOT SAME
THING, MODERATELY SEVERE IN
ONE LUNG BUT I KEEP THINKIN'
WHAT THE HECK'S THIS?
I DON'T WANT A STROKE.

Willie says NO,
IT'S NOT A STROKE.
PARKINSONS OR IT'S FAMILIAL
OR YOUR THYROID COULD BE OUT
OF WHACK.
BUT PARKINSONS WOULD BE THE
MOST COMMON.

Maureen says WELL, I WAS
WATCHING JANET RENO ON HER
PRESS CONFERENCE AT THE
ELIAN GONZALEZ THING AND YOU
COULD HEAR --

Willie asks HEAR HAND?

Maureen says YEAH, TAPPING AT
THE LECTURN.
I'M WONDERING IN NERVOUS
SITUATIONS DOES THE SHAKING
GET WORSE?

Willie says SURE,
SOMETIMES THEY CAN CONTROL
IT IF THEY'RE AWARE OF IT,
IF THEY'RE NERVOUS -- WHEN
WE WANT TO BE ON A TREMOR IN
THE CLINIC, WE BRING THAT ON,
AND YOU CAN SEE -- NOW WHEN
YOU WALK, ANNIE, IS THE
WALKING OKAY?
YOU'RE NOT DRAG YOUR FEET OR
STUMBLING OVER THINGS?

Annie says WELL, I HAD A BAD
ACCIDENT IN ONE LEG, I DO
HAVE A SLIGHT BUT NOT MUCH,
BUT WHAT BOTHERS ME WORSE
THAN THAT IS I TAKE THESE
TURNS WHERE I'M NOT -- I'M
NOT FAINTING BUT I'M JUST
ABOUT, AND I DON'T WANT TO
TAKE UP ANYMORE OF YOUR TIME,
DOCTOR, BUT I WAS CONCERNED
IN CASE I TOOK A STROKE.

Willie says WELL,
IF YOU'RE GETTING THESE
“TURNS” LIKE THAT WHERE YOU
HAVE THESE EPISODES WHERE
YOU'RE A BIT CONFUSED OR YOU
FEEL WEAK --

Annie says FEEL WEAK.

Willie says THAT
WOULD DEFINITELY BE
SOMETHING TO TALK TO YOUR
DOCTOR ABOUT.
THAT CHECK INTO FOR SURE.

Annie says ALL RIGHT, THANK
YOU, DOCTOR.

Willie says BYE-BYE.

Maureen says AND DECAF TEA.

Willie says DID
YOU EVER SEE THE WAITERS,
THE HANDS, BECAUSE THEY'RE
ALL DRINKING ESPRESSO IN THE
BACK ROOM?

Maureen says THAT'LL DO IT
ALL RIGHT, ANNE IS NEXT IN
MISSISSAUGA.
HELLO ANNE.

Anne says HI, HOW ARE YOU?

Maureen says GOOD THANKS.

Anne says GOOD SHOW.

Maureen says THANKS.

Anne says I WANT TO ASK THE
DOCTOR ABOUT THIS.
MY SISTER-IN-LAW HAS TURNED
76.
ABOUT A YEAR AGO, WE NOTICED
THAT SHE WAS HAVING SOME
MEMORY LOSS, BUT IT'S GOTTEN
QUITE PROGRESSIVELY WORSE.
SHE'S BEEN TO A GERIATRIC
DOCTOR.
THE DOCTOR HASN'T PRESCRIBED
ANY MEDICATION FOR HER.
HER MOTHER DIED OF
ALZHEIMER'S, SHE IS AWARE OF
THIS, OF HER MEMORY, SHE'S
VERY CONCERNED ABOUT IT AND
SHE THINKS SHE'S GOING TO BE
LIKE HER MOTHER.
NOW OUR PROBLEM IS SHE GETS
SO CONFUSED SOMETIMES, SHE
LOSES HER WAY WHEN SHE'S
DRIVING, SHE'LL SAY
SOMETHING TO YOU ON THE
PHONE AND THEN SHE DOESN'T
EVEN REMEMBER THE NEXT
MINUTE WHAT SHE HAS SAID.
BUT WHAT WE'RE REALLY,
REALLY WORRIED ABOUT IS WHEN
SHE IS INCAPABLE OF LOOKING
AFTER HERSELF, SHE'S IN HER
OWN HOME, SHE DOESN'T WANT
TO GET OUT OF HER HOUSE,
WHAT SHOULD WE DO?

Willie says I
THINK YOU SHOULD DO A “LET
ME DECIDE.”
THIS LITTLE BOOK.
BECAUSE WHAT THIS WILL DO IS
IT WILL ALLOW HER TO MAKE
DECISIONS.
SO IF THE TIME COMES WHEN
THEY CAN'T RECOGNIZE FAMILY
OR WHATEVER, BUT ALSO IT
WILL NOMINATE ONE OF YOU AS
HER DECISION-MAKER.
BECAUSE IF YOU -- IF SHE
BECOMES INCOMPETENT AND YOU
DON'T HAVE A DECISION-MAKER,
YOU HAVE TO GO THROUGH THE
PUBLIC YARD OF THE TRUSTEE
WHICH IS A FATE WORSE THAN
DEATH.
AND IF YOU HAVE SOMEBODY,
BECAUSE YOU HAVE TO GO TO
COURT, AND YOU HAVE TO GET
AN APPOINTMENT AND IT'S
REALLY A KILLER.
I MEAN, THEY DON'T WANT YOU
TO DO IT I'M NOT JUST SAYING
THIS, BUT THEY DON'T WANT
PEOPLE DOING IT.
SO WHAT YOU NEED TO DO IS
GET A POWER OF ATTORNEY NOW.
SO SHE NOMINATES SOMEBODY
AND SHE DISCUSSES HER WISHES
AND SHE TRUSTS SOMEBODY.

Maureen says BUT IT SOUNDS
LIKE SHE'S ALREADY SAYING TO
THEM “I DON'T EVER WANT TO
LEAVE MY HOME.”
AND LET'S FACE IT, FOR
SOMEONE WITH, IF SHE HAD
ALZHEIMER'S, SHE WOULDN'T BE
ABLE TO STAY ON HER OWN
FOREVER.

Willie says THAT'S
RIGHT.

Maureen continues HOW DO YOU
ADVISE FAMILIES ABOUT THE
TIME WHEN IT COMES TO MAKE
THAT DECISION THAT THEY HAVE
TO MOVE INTO A NURSING HOME
OR MAYBE IN WITH A RELATIVE
OR SOMETHING?

Willie says UM,
WITH A TRAJECTORY OF
ALZHEIMER'S, IT'S VERY SLOW
AT THE START BUT AS THE LADY
IS SAYING, OVER THE PAST SIX
MONTHS IT SEEMS TO PICK UP
SPEED.
AND PEOPLE ALWAYS TELL YOU
DAD'S HAD IT FOR THREE YEARS
BUT IN THE LAST SIX MONTHS
IT'S BEEN MUCH WORSE.
IT'S LIKE A SNOWBALL GOING
DOWN A HILL.
AND WHAT YOU GET WITH THE
ORIGINAL PROBLEM, ESPECIALLY
WITH ALZHEIMER'S IS
REPEATING QUESTIONS,
REPEATING STORIES.
CAN'T REMEMBER YOU WHAT JUST
TOLD THEM.
THEY FORGET TO TAKE THEIR
PILLS BECAUSE THEY CAN'T --
THEY GET DISORIENTED IN
TIME.
WHAT DAY OF THE WEEK IT IS.
SOMEBODY HAS TO DO THEIR
SHOPPING AND THEIR COOK.
THEY LEAVE THE STUFF ON THE
STOVE AND FORGET ABOUT IT.
THE PHONE RINGS, AND THAT'S
WHERE THE PROBLEMS, THE
SAFETY ISSUES ARE A BIG
ISSUE.
IF YOU CAN GET SOMEBODY TO
GET MEALS ON WHEELS AND
SOMEBODY'S DROPPING IN
EVERYDAY, FILLING UP THEIR
MEDICATIONS AND THAT KIND OF
STUFF, THEY CAN STAY AT HOME
MUCH LONGER.
THE TROUBLE IS, THOUGH, THAT
THE FEEDING STARTS TO BECOME
A PROBLEM.
THEY DON'T EAT SO WELL.
AND SO IDEALLY PEOPLE SHOULD
REALLY GO TO RETIREMENT
HOMES EARLIER, ESPECIALLY IF
THEY'RE ON THEIR OWN.
BECAUSE THE RETIREMENT HOME,
THEY GET THEIR MEDICATIONS
TAKEN CARE OF, THEIR FOOD
TAKEN CARE OF, THEY'LL BE
SOCIALLY -- LIKE MEETING
PEOPLE.
LIKE I ALWAYS SAY TO PEOPLE
WHEN YOU'RE YOUNG, YOUR HOME
IS YOUR CASTLE.
BUT WHEN YOU GET DISABLED,
YOUR HOME BECOMES YOUR
PRISON.
BECAUSE WHEN YOU CAN'T DRIVE
ANYMORE AND YOU CAN'T GO OUT,
YOU'RE STUCK AT HOME ALL THE
TIME.
AND YOU'RE SITTING THERE
LOOKING OUT THE WINDOW,
WAITING FOR THE NEXT VISITOR,
WHO MIGHT BE TWO DAYS AWAY.
SO IT REALLY IS -- THEY'RE
QUITE LONG DAYS.

Maureen says IT CAN BE
LONELY.

Willie says
ESPECIALLY IF YOU HAD THE
MONEY, SHE HAD HER HOUSE,
SELL HER HOUSE, MOVE INTO A
RETIREMENT HOME, HER OWN
FURNITURE, SET IT UP LIKE AN
APARTMENT, IT REALLY IS THE
ANSWER.
BUT YOU NEED POWER OF
ATTORNEY.
YOU NEED A DECISION-MAKER
FOR HER AND SOMEONE TO TALK
TO.
BUT I'M A BIT DISTURBED TO
HEAR SHE DIDN'T GET
TREATMENT.

Maureen says IF THIS IS
ALZHEIMER'S, SHE SHOULD BE
ON THOSE MEDICATIONS EARLY.

Dr. WILLIE MOLLOY:
ABSOLUTELY.

Maureen asks ARE YOU
CONFIDENT THAT MOST FAMILY
PHYSICIANS CAN MAKE THIS
DIAGNOSIS ON THEIR OWN?

Willie says SOME
FAMILY PHYSICIANS ARE MUCH
BETTER THAN OTHERS.
SOME OF THEM LIKE OLDER
ADULTS, OF THEM LIKE KIDS
AND WOMEN.
THEY'RE ALL DIFFERENT BUT
SOME OF THEM ARE VERY GOOD.
BUT NOT EVERYBODY,
OBVIOUSLY.
BUT I'M -- I GO, I'D GO BACK
AND ASK ABOUT TREATMENT.
PARTICULARLY ABOUT, YOU KNOW,
ARISEPT, PARTICULARLY ABOUT
BABY ASPIRIN AND VITAMIN E
AND STUFF LIKE THAT SHOULD
SHE BE ON THAT STUFF, FOR
SURE.

Maureen says OKAY.
YOU'VE BEEN IN A LOT OF
NURSING HOMES.
YOU KNOW, IN AROUND THE
HAMILTON AREA --

Willie says I
DON'T THINK THERE'S A
NURSING HOME IN ONTARIO I
HAVEN'T BEEN IN THERE'S.

Maureen says THERE YOU GO.
WE HEAR ABOUT THE HORROR
STORIES BUT RARELY ABOUT THE
GOOD ONES.
OVERALL HOW IS THE CARE IN
THE NURSING HOMES IN THE
PROVINCE?

Willie says WE
HAVE SOME OF THE BEST
NURSING HOMES IN THE WORLD.
THE PEOPLE WHO WORK IN
LONG-TERM CARE I THINK ARE
PROBABLY IN MY OPINION THE
MOST DEDICATED PEOPLE WE
HAVE IN OUR HEALTHCARE
SYSTEM.
THE CARE THEY GET -- THERE'S
NO QUESTION IN MY MIND.
I WOULD SAY, AND I WORK IN
ACUTE CARE HOSPITALS, THAT
EVEN THE WORST NURSING HOMES
ARE PROBABLY BETTER THAN THE
ACUTE CARE SYSTEM.

Maureen asks THAN THE
HOSPITALS?

Willie says YEAH,
FOR OLD PEOPLE.
BECAUSE THE HOSPITALS DON'T
WANT OLD PEOPLE, UNLESS
THEY'RE SPECIFICALLY
LONG-TERM CARE.
BUT THE ACUTE CARE WARDS ARE
NO PLACE FOR OLD PEOPLE.
SURGICAL WARDS, THEY DON'T
WANT THEM THERE, THEY DON'T
FIT, DON'T BELONG.
THE LONG-TERM CARE SYSTEM IS
GREAT.
THE PROBLEM WITH THE
LONG-TERM CARE SYSTEM IS
THAT WE DON'T HAVE ENOUGH
RESOURCES.
THERE'S NOT ENOUGH GOOD
NURSES.
I MEAN, WE HAD AN OPEN
SEASON ON NURSES IN THIS
PROVINCE.
WE LAID OFF THOUSANDS OF
THEM, AND EVERYBODY -- AND
WHEN GO AND TELL PEOPLE IN
AUSTRALIA OR TELL PEOPLE IN
ALBERTA OR TELL THEM IN
EUROPE THAT WE LAID OFF
NURSES, THEY LOOK OUGHT LIKE
STUNNED.

Maureen says BECAUSE THEY
CAN'T GET ENOUGH.
THEY'RE IMPORTING THEM.

Willie says NOBODY
CAN GET NURSES AND WE
CRUCIFIED OUR NURSES HERE.
AND OUR NURSES LEFT AND A
LOT OF THEM WON'T COME BACK.
AND WE REALLY, WE DID -- I
THINK WE DID IRREPARABLE
DAMAGE TO OUR SYSTEM AND I
STILL THINK WE'RE DOING
IRREPABLE DAMAGE TO OUR
SYSTEM AND SLOWLY OUR SYSTEM
IS UNRAVELLING NZ.

Maureen says AND THE NURSES
ARE REALLY THE GLUE THAT
HOLDS IT ALL TOGETHER,
AREN'T THEY?

Willie says 80 percent OF
THE HEALTHCARE SYSTEM IS IT
NURSES.
IF YOU DON'T HAVE NURSES YOU
DON'T HAVE A HEALTHCARE
SYSTEM.
WE'VE PROTECTED THE DOCTORS
TO THE DETRIMENT OF THE
NURSES.
WE'VE SACRIFICED THE NURSES
FOR THE DOCTORS, IN ORDER TO
MAINTAIN THE SALARIES.
AND I HAVE NO RESPECT FOR
THE E.M.A., ZERO.
AND I WANT REALLY, REALLY
THINK THAT WE HAVE DONE
NURSES A TERRIBLE
DISSERVICE.
AND A LONG-TERM CARE SYSTEM
IS WHERE NURSING CARE IS ALL
ABOUT.
IT'S 90 percent NURSING CARE AND WE
HAVE REALLY DONE OUR NURSES
A DISSERVICE.

Maureen says OKAY.
THEY MUST LOVE YOU.

Willie says AND
I'VE BEEN TO SOME OF THE
BEST NURSING HOMES IN THE
WORLD, BUT NO MATTER HOW
GOOD THE NURSING IS, IF YOU
DON'T HAVE ENOUGH STAFF --
NOW WE'VE COME A LONG WAY IN
ONTARIO.
I DON'T KNOW IF YOU KNOW,
BUT WE HAVE NEW GUIDELINES
FOR NURSING HOMES, FOR
ENVIRONMENT, WE HAVE ALL
ONE-BEDDER, NO FOUR-BEDDERS
ANYMORE.
I WAS JUST IN KOREA LAST
WEEK AND A ROOM THIS SIZE
THERE WAS EIGHT BEDS THAT
MUCH APART.

Maureen says SO CROWDED AND
CRAMPED AND NO PRIVACY.

Willie says BUT
INTERESTINGLY, MAUREEN, TINY
BEDROOMS BUT HUGE ACTIVITY
AREAS.
THEY DON'T WANT THEM IN THE
BEDROOMS.
THEY WANT THEM OUT OF THE
BEDROOMS.
TO HAVE ACTIVITIES, SING
SONGS AND STUFF LIKE THAT
BUT WHEN THEY GO INTO THE
ROOMS THERE'S TWO HEALTHCARE
AIDS WITH THEM ALL THE TIME.
BUT IT'S DIFFERENT TO US,
BUT WE HAVE SOME GREAT
NURSING HOMES, BUT NO MATTER
HOW GOOD THE NURSING HOME IS,
WE NEED STAFF IN THEM, WE
NEED THE STAFF PAID.
OUR NURSE'S AIDS, HEALTHCARE
AIDS ARE NOT BEING PAID
ENOUGH.
THEY'RE NOT GETTING ENOUGH
TRAINING.
WE'RE TRYING, BUT WE --
WE'VE ALWAYS REGARDED OUR
LONG-TERM CARE SYSTEM AS A
SECOND-CLASS TYPE SYSTEM.
ACUTE CARE SYSTEM HAS ALL
THE TOYS AND SPECIALISTS AND
BELLS AND WHISTLES BUT
REALLY OUR LONG-TERM CARE
SYSTEM IS SUPERB.

Maureen says OKAY, ARLENE IS
NEXT IN AJAX.
HI, ARLENE.

Arlene says HI.

Maureen says HI.

Arlene says MY CONCERN IS A
LITTLE BIT DIFFERENT.
I HAVE A 76-YEAR-OLD
MOTHER-IN-LAW WHO IS
SUFFERING FROM MANIC
DEPRESSION, ARTHRITIS.
SHE ALSO GETS SWELLING OF
THE LEGS, WATER ON THE LEGS.
MY PROBLEM IS THAT SHE
DOESN'T DO WHAT'S NEEDED TO
BE DONE TO TAKE CARE OF
HERSELF.
AND WHEN YOU TRY AND TELL
HER, “OKAY, YOU KNOW YOU
NEED TO PUT YOUR FEET UP,
YOU NEED TO WEAR THE
STOCKINGS” OR SHE'S ALSO
OBESE, SO SHE DOES NOT LIKE
THE WORD “DIET.”
IT CREATES FRUSTRATION.

Maureen asks IS SHE LIVING
ALONE, ON HER OWN?

Arlene says YES, SHE IS.
HOW WOULD YOU, HOW WOULD YOU
DEAL WITH SOMEONE LIKE THAT?

Willie asks YOU'RE
THE DAUGHTER-IN-LAW?

Arlene says YES.

Willie asks AND
HOW DOES THE SON DEAL WITH
IT?
HE LEAVES IT TO YOU?

Arlene says MORE OR LESS.
MY HUSBAND WORKS AND I'M
GENERALLY THE ONE WHO --
LIKE I SPEAK TO HER EVERY
DAY.
WE'VE RECENTLY -- SHE'S LOST
A DAUGHTER JUST TWO DAYS
BEFORE NEW YEAR, AND SHE'S
DEALING WITH THAT.
SO, YOU KNOW, I'M TALKING
WITH HER ABOUT THAT, AND I'M
TRYING TO GET HER TO GO TO
GRIEF COUNSELLING, BUT SHE'S
VERY, VERY STUBBORN.
HOW DO YOU DEAL WITH SOMEONE
LIKE THAT?

Willie asks DO YOU
GO TO HER DOCTOR'S VISITS
WITH HER?

Arlene says NO, I DON'T.

Willie says YOU
SHOULD.
YOU SHOULD.

Arlene says RECENTLY I DID
PHONE HER DOCTOR BECAUSE SHE
WAS RECOMMENDED TO GO SEE A
PSYCHIATRIST FOR HER
DEPRESSION.
AND HER DOCTOR -- I SAID,
YOU KNOW, SHE NEEDS SOMEONE
TO BE SEEN SOONER.
AND SHE SAID TO JUST TAKE
HER TO THE HOSPITAL.
SO WE ENDED UP TAKING HER TO
THE HOSPITAL, BUT SHE WAS
RELEASED THAT DAY BECAUSE
SHE GETS IN THESE SWINGS,
BEING A MANIC DEPRESSIVE.
YOU KNOW, IN THE MORNING SHE
COULD BE REALLY, REALLY DOWN
AND CRYING, BUT LATER ON IN
THE DAY YOU SPEND TIME WITH
HER, YOU KNOW, SHE GETS UP.

Willie asks AND IS
SHE ON LITHIUM?

Arlene says UH, NO.
SHE WAS ON LITHIUM FOR MANY
YEARS.
SHE'S PUT ON SOMETHING
DIFFERENT NOW.
I'M NOT SURE WHAT IT IS.

Willie asks
PHALLYPROIC ACID?
SODIUM PHALLPROAIDE?

Arlene says I'M NOT SURE.
APPARENTLY THE LITHIUM WAS
HURTING HER KIDNEYS OR
LIVERS.

Willie says WHAT I
WOULD DO TO YOU IS GO TO THE
DOCTOR WITH HER.
I WOULD TELL THE DOCTOR
ABOUT YOUR CONCERNS AND THEN
YOU COULD GO WITH HER TO THE
DOCTOR AND YOU DON'T HAVE TO
BE RIGHT UP FRONT WITH THE
DOCTOR BUT LISTEN AND BECOME
MORE INVOLVED, PARTICULARLY
WITH THE MEDICATION.
SHE MAY NOT BE TAKING THE
MEDS.
SHE MAY BE SKIPPING THEM
BECAUSE SOME OF THE MANIC
DEPRESSIVES, THEY LIKE BEING
HIGH AND DON'T LIKE TAKING
IT.
THEY FILE LIKE THEY'RE IN A
STRAIGHT JACKET.
GO TO THE FAMILY DOCTOR,
DISCUSS THE ISSUES AND GET
THE DOCTOR ON BOARD.
MAYBE YOU CAN GET A VISITING
NURSE TO COME IN ONCE A WEEK,
KEEP AN EYE ON THINGS, CHECK
THE BLOOD PRESSURE,
SOMETHING LIKE THAT.
AND THAT WAY YOU FEEL YOU
HAVE SOME FRAMEWORK AROUND
HER, SOME SUPPORT AND YOU
CAN GETS AN OPINION FROM AN
OUTSIDE PROFESSIONAL SO IT'S
NOT JUST YOU AND YOUR
ANXIETY.

Maureen asks HOW COMMON IS
DEPRESSION IN THE ELDERLY?

Willie says VERY
COMMON.
ESPECIALLY IF YOU HAVE
ALZHEIMER'S OR A DISABLING
ILLNESS LIKE PARKINSONS OR A
STROKE OR PAIN.
IT'S QUITE COMMON AND OFTEN
MISSED.

Maureen says THE DIAGNOSIS
ISN'T MADE AND SO THEY DON'T
GET HELP.

Willie says YEAH.
AND THE LITHIUM WILL HELP
WITH THE UPS BUT DOESN'T
HELP WITH THE DOWNS.
SOMETIMES YOU MAY HAVE TO
GIVE SOMETHING FOR THAT AS
WELL.
BUT SHE MIGHT BENEFIT FROM
SEEING A PSYCHIATRIST.

Maureen says AND NOW YOU ASK
WHAT IS ARLENE'S HUSBAND
DOING.
DOES MOST OF THE CAREGIVING
FALL TO THE WOMEN?
WHETHER IT'S THE DAUGHTER OR
THE DAUGHTER-IN-LAW?

Willie says SURE.
SURE IT DOES.
BECAUSE THE MEN HAVE NOT
BEEN TRAINED TO DO THAT.
YOU KNOW, THE ROLE OF THE
OLDER PARENT IS LIKE THE
EXTENSION OF THE CHILDREN.
LIKE ARLENE TOOK THE
CHILDREN TO HOCKEY AND TOOK
THEM HERE AND GOT THEM THEIR
CLOTHES ASK THEIR NEW SHOES
AND GOT THEIR HAIRCUTS AND
STUFF LIKE THAT, BECAUSE SHE
WAS A MOM AT HOME, RIGHT?
AND THE FATHER WORKED AND HE
CAME HOME AND HE GOT THE
FOOD ON THE TABLE AND ATE IT
AND READ THE PAPER.
THAT'S THE WAY WE CONDITION
THEM.
THAT'S THE WAY WE HAVE IT.
NOW SOCIETY IS CHANGING OVER
WITH THAT WHOLE GENERATION,
BUT MEN ARE GOOD CAREGIVERS
WHEN THEY DO IT.
THERE'S VERY FEW PEOPLE
WHO'S AS GOOD AS THE MALE
TAKING CARE OF THE WIFE WITH
ALZHEIMER'S.
SOME OF THEM ARE FANTASTIC.
THEY REALLY TAKE IT ON AND
DO A GREAT JOB.
BUT THAT MIDDLE GENERATION,
LIKE ARLENE'S AGE, THESE
WOMEN ARE REALLY STRESSED.

Maureen says YEAH.

Willie continues AND
SHE HAS NO PURCHASE WITH THE
MOTHER-IN-LAW.
IT'S NOT HER MOTHER.

Maureen says THAT'S RIGHT.

Willie continues AND
OFTEN TIMES THERE'S SOME
RESENTMENT THERE.

Maureen says IF SHE'S ALWAYS
CAJOLLING, YOU'VE GOT TO PUT
YOUR FEET UP, TAKE THE
MEDICATION --

Willie says AND
NOW SHE'S LOST A DAUGHTER,
THE SON HAS TO BACK HER UP
AS WELL, BECOME MORE
INVOLVED.
BECAUSE ARLENE KIND OF IS
REALLY IN A SANDWICH BUT
SHE'S GOT NO GRIP ON HER.
AND SHE'S GOT TO START GOING
TO THE FAMILY DOCTOR AND
TELLING THE FAMILY DOCTOR
HER CONCERNS AND BECOMING
PART OF THAT.
ONE OF THE FIRST THINGS YOU
DO.

Maureen says IN SOME WAYS I
GUESS THE FAMILY'S LUCKY
THAT SOMEONE IS AVAILABLE TO
GO OVER.
WHAT DO YOU THINK OF THIS
NOTION OF ETERNITY LEAVE?
SOME PEOPLE ARE FIGHTING FOR
THIS WHERE WE GET TO TAKE
SOMETIME OFF WORK TO GO CARE
FOR OUR DYING OR AGING
RELATIVE MOTHER OR FATHER?
I MEAN, THIS IS GOING TO
COME UP MORE AS THE BABY
BOOMERS AND THEIR PARENTS
AGE.

Willie says YEAH,
I MEAN, YOU KNOW, A MAN CAN
GET PATERNITY LEAVE NOW
WHICH IS GREAT AND MATERNITY
LEAVE FOR WOMEN.
BUT YOU'RE ABSOLUTELY RIGHT.
THE ROLE OF CARE -- 80 percent OF
CARE, MORE THAN 80 percent, IS
GIVEN BY FAMILY MEMBERS AND
FRIENDS AND THE HEALTHCARE
SYSTEM ONLY GIVES A TINY
AMOUNT.
AND IF YOU LOOK AT THE
DEMOGRAPHICS, THE NUMBERS OF
PEOPLE ARE EXPLODING.
AND WHO'S GOING TO CARE FOR
THEM?
AND AS FAMILIES FRACTURE AND
PEOPLE ARE MORE AND MORE ON
THEIR OWN, THIS GENERATION
ESPECIALLY HAVE BEEN FAIRLY
SELFISH.
YOU KNOW, THERE'S NOT THE
CHILDRENMENT THE FERTILITY
RATES ARE 1.5.
SO THERE WON'T BE THE
CHILDREN TO TAKE CARE OF
THESE PEOPLE.
WHO'S GOING TO DO IT?
I MEAN, IT'S A REAL BIG
PROBLEM FOR US.

Maureen asks AND WHAT CAN WE
DO ABOUT THAT?
I MEAN, IS THIS SOMETHING WE
HAVE TO TALK TO OUR
POLITICIANS ABOUT, DO YOU
THINK?

Willie says I'D LOVE TO IF I EVER
HAD THE MONEY, I WOULD LOVE
TO BUILD LIKE A HIPPIE
COMMUNE FOR OLD PEOPLE.

Maureen says REALLY?!
(LAUGHING)

Willie says YEAH,
I WOULD.
I'D LOVE TO BUILD A SERIES
OF LITTLE HOUSES IN THE
COUNTRY WITH A CENTRAL PLACE
WITH LITTLE GOLF CARTS WHERE
PEOPLE -- THINK OF VISION IN
MY HEAD, WHERE PEEP KEL GO
AND LIVE AND WORK TOGETHER
AS A COMMUNE.
AND STAY INDEPENDENTLY.

Maureen says SOUND GOOD.

Willie continues I MEAN,
I DON'T WANT TO LIVE IN A
CITY BLOCK WITH AN APARTMENT,
BECAUSE THAT'S BRUTAL.
I MEAN, A CITY LANDSCAPE IS
NOT THE PLACE TO BE IF YOU
HAVE A VISUAL IMPAIRMENT OR
HEARING IMPAIRMENT.
THE SORT OF COUNTRY SORT OF,
EVERYBODY CHIPPING IN AND
ONE PERSON WHO CAN DRIVE,
DRIVING FOR EVERYBODY, THAT
SORT OF IDEA.

Maureen says LET ME KNOW IF
YOU OPEN IT, OKAY?

Willie says I'D
LOVE TO.

Maureen says WE'LL PAY A
VISIT.
GOOD TO HAVE YOU VISIT
AGAIN.
THANK YOU.
Dr. WILLIE MOLLOY IS THE
DIRECTOR OF THE HAMILTON
HEALTH SCIENCES GROUP AND
MEMORY CLINIC IN HAMILTON AT
THE HEALTH SCIENCES
CORPORATION.
HE'S ALSO THE AUTHOR OF “LET
ME DECIDE,” AN ADVANCED
HEALTHCARE DIRECTIVE.
TO ORDER YOUR COPY YOU CAN
CALL 905-628-0354
OR YOU CAN ORDER BY FAX AT
905-628-4901 AND E-MAIL YOUR
ORDER TO IDECIDE AT NETCOM.CA
FOR MORE INFORMATION ON
ALZHEIMER'S, CALL THE
ALZHEIMER SOCIETY OF CANADA
AT 1-800-616-8816 OR VISIT
THEIR WEBSITE WWW.ALZHEIMER.CA
AND THAT’S ALL THE TIME WE HAVE
BUT THANKS FOR WATCHING AND
DO TUNE IN MONDAY THROUGH FRIDAY
AT ONE O’ CLOCK.

A closing slate reads “The advice given in the preceding program is of a general nature only. Viewers should consult their own medical professional for medical advice specific to their circumstances.”

Watch: Elder Care